ArticleBMC medical informatics and decision making2007
Developing a web-based information resource for palliative care: an action-research inspired approach.
Article in BMC medical informatics and decision making, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 1 of them a synthesis that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
12 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Collaborative writing applications in healthcare: effects on professional practice and healthcare outcomes.The Cochrane database of systematic reviews · 2017Pooled it
- Effects of online palliative care training on knowledge, attitude and satisfaction of primary care physicians.BMC family practice · 2011Trial
- Best Practices and Lessons Learned for Action Research in eHealth Design and Implementation: Literature Review.Journal of medical Internet research · 2022Review
- Radically Rethinking Renal Supportive and Palliative Care in South Africa.Kidney international reports · 2021Review
- WhatsApp Messenger use in oncology: a narrative review on pros and contras of a flexible and practical, non-specific communication tool.Ecancermedicalscience · 2021Review
- Exploring the usefulness of Lexis diagrams for quality improvement.BMC medical informatics and decision making · 2020Article
- Development of an eHealth information resource for family carers supporting a person receiving palliative care on the island of Ireland.BMC palliative care · 2019Article
- Education, Training, and Mentorship of Caregivers of Canadians Experiencing a Life-Limiting Illness.Journal of palliative medicine · 2018Article
- Development of Common Data Elements to Provide Tele self-Care Management.Acta informatica medica : AIM : journal of the Society for Medical Informatics of Bosnia & Herzegovina : casopis Drustva za medicinsku informatiku BiH · 2013Article
- Iterative evaluation of a web-based health information resource.Journal of health communication · 2013Article
- Development of a computer-aided clinical patient education system to provide appropriate individual nursing care for psychiatric patients.Journal of medical systems · 2012Article
- Review of health information technology usability study methodologies.Journal of the American Medical Informatics Association : JAMIAReview
Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundGeneral Practitioners and community nurses rely on easily accessible, evidence-based online information to guide practice. To date, the methods that underpin the scoping of user-identified online information needs in palliative care have remained under-explored. This paper describes the benefits and challenges of a collaborative approach involving users and experts that informed the first stage of the development of a palliative care website 1.
methodThe action research-inspired methodology included a panel assessment of an existing palliative care website based in Victoria, Australia; a pre-development survey (n = 197) scoping potential audiences and palliative care information needs; working parties conducting a needs analysis about necessary information content for a redeveloped website targeting health professionals and caregivers/patients; an iterative evaluation process involving users and experts; as well as a final evaluation survey (n = 166).
resultsInvolving users in the identification of content and links for a palliative care website is time-consuming and requires initial resources, strong networking skills and commitment. However, user participation provided crucial information that led to the widened the scope of the website audience and guided the development and testing of the website. The needs analysis underpinning the project suggests that palliative care peak bodies need to address three distinct audiences (clinicians, allied health professionals as well as patients and their caregivers).
conclusionWeb developers should pay close attention to the content, language, and accessibility needs of these groups. Given the substantial cost associated with the maintenance of authoritative health information sites, the paper proposes a more collaborative development in which users can be engaged in the definition of content to ensure relevance and responsiveness, and to eliminate unnecessary detail. Access to volunteer networks forms an integral part of such an approach.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.