ArticleJournal of medical ethics2007
Views of patients with heart failure about their role in the decision to start implantable cardioverter defibrillator treatment: prescription rather than participation.
Article in Journal of medical ethics, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed, 46 citations in OpenAlex.
- The Dutch Implantable Cardioverter-Defibrillator Decision Aid in Clinical Practice: A Stepped-Wedge Randomized Controlled Trial.Medical decision making : an international journal of the Society for Medical Decision Making · 2026Trial
- The development of a decision aid for shared decision making in the Dutch implantable cardioverter defibrillator patient population: A novel approach to patient education.Frontiers in cardiovascular medicine · 2022Article
- Article
- Decision-Making Experiences of Patients with Implantable Cardioverter Defibrillators.Pacing and clinical electrophysiology : PACE · 2016Article
- Perceived Benefits of Implantable Cardioverter Defibrillator Implantation among Heart Failure Patients and Its Relation to Quality of Life: A Cross-Sectional Study.Cardiology and therapy · 2015Article
- [Implantable cardioverter-defibrillator at the end of life].Herzschrittmachertherapie & Elektrophysiologie · 2015Article
- Making decisions about implantable cardioverter-defibrillators from implantation to end of life: an integrative review of patients' perspectives.The patient · 2014Review
- Patients' decision making to accept or decline an implantable cardioverter defibrillator for primary prevention of sudden cardiac death.Health expectations : an international journal of public participation in health care and health policy · 2013Article
- Person centred care and shared decision making: implications for ethics, public health and research.Health care analysis : HCA : journal of health philosophy and policy · 2012Article
- Informed consent in cardiac resynchronization therapy: what should be said?Circulation. Cardiovascular quality and outcomes · 2011Review
- The ethics of implantable devices.Journal of medical ethics · 2007Article
Corrections and comments
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Authors and funding
4 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is a shortage of reports on what potential recipients of implantable cardioverter-defibrillators (ICDs) need to be informed about and what role they can and want to play in the decision-making process when it comes to whether or not to implant an ICD.
aimsTo explore how patients with heart failure and previous episodes of malignant arrhythmia experience and view their role in the decision to initiate ICD treatment. PATIENTS AND
methodsA qualitative content analysis of semistructured interviews was used. The study population consisted of 31 outpatients with moderate heart failure at the time of their first ICD implantation.
settingThe study was performed at Sahlgrenska University Hospital, Göteborg, Sweden.
resultsNone of the respondents had discussed the alternative option of receiving treatment with anti-arrhythmic drugs, the estimated risk of a fatal arrhythmia, or the expected time of survival from heart failure in itself. Even so, very little criticism was directed at the lack of information or the lack of participation in the decision-making process. The respondents felt that they had to rely on the doctors' recommendation when it comes to such a complex and important decision. None of them regretted implantation of the ICD.
conclusionsThe respondents were confronted by a matter of fact. They needed an ICD and were given an offer they could not refuse, simply because life was precious to them. Being able to give well-informed consent seemed to be a matter of less importance for them.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.