ArticleHealth expectations : an international journal of public participation in health care and health policy2007
Assessment of the benefits of user involvement in health research from the Warwick Diabetes Care Research User Group: a qualitative case study.
Article in Health expectations : an international journal of public participation in health care and health policy, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 44 papers, 2 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
44 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Patient and service user engagement in research: a systematic review and synthesized framework.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- Mapping the impact of patient and public involvement on health and social care research: a systematic review.Health expectations : an international journal of public participation in health care and health policy · 2014Pooled it
- Effectiveness of peer-delivered sleep health education and social support in increasing OSA evaluation among at-risk blacks.Journal of sleep research · 2025Trial
- Tailored approach to sleep health education (TASHE): study protocol for a web-based randomized controlled trial.Trials · 2016Trial
- Meaningful engagement of lived experience in diabetes research and health service improvement: A rapid review of barriers to and enablers for community involvement among adults with type 2 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Review
- Evaluation of the impact of patient and public involvement on doctoral students in palliative dementia care research.Research involvement and engagement · 2025Article
- The Importance of Lived Experience: A Scoping Review on the Value of Patient and Public Involvement in Health Research.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Experiences of externalisation in recovery from Anorexia Nervosa: a reflexive thematic analysis.Journal of eating disorders · 2024Article
- Patient and public involvement and engagement (PPIE): how valuable and how hard? An evaluation of ALL_EARS@UoS PPIE group, 18 months on.Research involvement and engagement · 2024Article
- Patient and Public Involvement in Inflammatory Bowel Disease Research-A Scoping Review.Journal of the Canadian Association of Gastroenterology · 2024Article
- A scoping review of methods to measure and evaluate citizen engagement in health research.Research involvement and engagement · 2022Article
- Evolution of a research team: the patient partner perspective.Research involvement and engagement · 2022Article
- Mirroring, monitoring, modelling, belonging, and distancing: Psychosocial processes in an online support group of breast cancer patients.Journal of community psychology · 2022Article
- Users' and researchers' construction of equity in research collaboration.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Evaluating the "return on patient engagement initiatives" in medicines research and development: A literature review.Health expectations : an international journal of public participation in health care and health policy · 2020Review
- How patient and community involvement in diabetes research influences health outcomes: A realist review.Health expectations : an international journal of public participation in health care and health policy · 2019Review
- Patient stakeholder engagement in research: A narrative review to describe foundational principles and best practice activities.Health expectations : an international journal of public participation in health care and health policy · 2019Review
- Rehabilitation environments: Service users' perspective.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- The burden of proof: The process of involving young people in research.Health expectations : an international journal of public participation in health care and health policy · 2019Article
- A co-produced method to involve service users in research: the SUCCESS model.BMC medical research methodology · 2019Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo assess the benefits of involving health-care users in diabetes research. DESIGN AND
participantsFor this qualitative case study, semi-structured interviews were conducted with researchers who had worked extensively with the group. During regular meetings of the Research User Group, members discussed their views of the group's effectiveness as part of the meeting's agenda. Interviews and discussions were transcribed, coded using N-Vivo software and analysed using constant comparative methods.
resultsInvolvement of users in research was generally seen as contributing to effective and meaningful research. However, the group should not be considered to be representative of the patient population or participants of future trials. An important contributor to the group's success was its longstanding nature, enabling users to gain more insight into research and form constructive working relationships with researchers. The user-led nature of the group asserted itself, especially, in the language used during group meetings. A partial shift of power from researchers to users was generally acknowledged. Users' main contribution was their practical expertise in living with diabetes, but their involvement also helped researchers to remain connected to the 'real world' in which research would be applied. While the group's work fulfilled established principles of consumer involvement in research, important contributions relying on personal interaction between users and researchers were hard to evaluate by process measures alone.
conclusionsWe demonstrated the feasibility, acceptability and effectiveness of this longstanding, experienced, lay-led research advisory group. Its impact on research stems from the continuing interaction between researchers and users, and the general ethos of learning from each other in an on-going process. Both process measures and qualitative interviews with stakeholders are needed to evaluate the contributions of service users to health research.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.