ArticleHealth expectations : an international journal of public participation in health care and health policy2007
Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations.
Article in Health expectations : an international journal of public participation in health care and health policy, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 97 papers, 3 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
97 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Socio-economic differences in patient participation behaviours in doctor-patient interactions-A systematic mapping review of the literature.Health expectations : an international journal of public participation in health care and health policy · 2019Pooled it
- Congruence between patients' preferred and perceived participation in medical decision-making: a review of the literature.BMC medical informatics and decision making · 2014Pooled it
- Preferred roles in treatment decision making among patients with cancer: a pooled analysis of studies using the Control Preferences Scale.The American journal of managed care · 2010Pooled it
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- Configural frequency analysis as a method of determining patients' preferred decision-making roles in dialysis.BMC medical informatics and decision making · 2010Trial
- Arabic translation and psychometric validation of the Problem-Solving Decision-Making scale: A cross-sectional study in Saudi Arabia.PloS one · 2026Article
- Supporting Oral and Long-Acting HIV Preexposure Prophylaxis Decision-Making Among Pregnant Women (MyChoice Intervention): Protocol for 2 Pilot Randomized Controlled Trials.JMIR research protocols · 2025Article
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- Examining the relationship between clinician communication and patient participatory behaviors in cardiology encounters.Patient education and counseling · 2022Article
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- Decision Needs and Preferred Strategies for Shared Decision-Making in Rheumatoid Arthritis: Perspectives of Canadian Urban Indigenous Women.Arthritis care & research · 2022Article
- Preference for shared decision-making among Arabic-speaking people with chronic diseases: a cross-sectional study.BMJ open · 2022Observational
- Patient-Centered Care and Healthcare Consumerism in Online Healthcare Service Advertisements: A Positioning Analysis.Journal of patient experience · 2022Article
- Exploring Ghanaian nurses knowledge and application of bio-ethical principles in postoperative pain management.PloS one · 2022Article
- What role do patients prefer in medical decision-making?: a population-based nationwide cross-sectional study.BMJ open · 2021Article
- Ileostomy or ileal pouch-anal anastomosis for ulcerative colitis: patient participation and decisional needs.BMC gastroenterology · 2021Article
- Factors Associated With Patient Engagement in Shared Decision-Making for Stroke Prevention Among Older Adults with Atrial Fibrillation.Canadian geriatrics journal : CGJ · 2021Article
37 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWhat role do people want to play in treatment decision-making (DM)?
objectiveExamine the role patients indicate they would prefer in making treatment decisions across multiple clinical settings in Ontario, Canada.
designSecondary analysis of a series of survey/interview-based studies measuring preferred role, conducted in 12 different populations. SETTING AND
participantsRespondents were outpatients, largely but not entirely attending outpatient clinics in large teaching hospitals in urban settings in the Province of Ontario, Canada. The subgroups and sample sizes were: breast cancer (202), prostate disease (202), fractures (202), continence (46), orthopaedic (111), rheumatology (56), multiple sclerosis (22), HIV/AIDS (431), infertility (454), benign prostatic hyperplasia (678) and cardiac disease (300), plus 50 healthy nursing students (for scale validation). MEASUREMENTS: All studies categorized preferred role using the Problem-Solving Decision-Making (PSDM) scale with one or both of the Current Health condition and Chest Pain vignettes.
resultsFew respondents preferred an autonomous role (1.2% for the current health condition vignette and 0.7% for the chest pain vignette); most preferred shared DM (77.8% current health condition; 65.1% chest pain) or a passive role (20.3% current health condition; 34.1% chest pain). Familiarity with a clinical condition increases desire for a shared (as opposed to passive) role. Preferences for passive vs. shared roles varied across settings; older and less educated individuals were most likely to prefer passive roles.
conclusionsDespite consumerist rhetoric among some bioethicists, very few respondents wish an autonomous role. Most wish to share DM with their providers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.