ArticleAmerican journal of public health2007
Improving disclosure and consent: "is it safe?": new ethics for reporting personal exposures to environmental chemicals.
Article in American journal of public health, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 68 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
68 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Recruiting underserved populations to dermatologic research: a systematic review.International journal of dermatology · 2011Pooled it
- Outcomes from Returning Individual versus Only Study-Wide Biomonitoring Results in an Environmental Exposure Study Using the Digital Exposure Report-Back Interface (DERBI).Environmental health perspectives · 2021Trial
- Trial
- A personalized tutorial to improve understanding of individual chemical results and opportunities for reducing exposure.Journal of exposure science & environmental epidemiology · 2026Article
- Bridging Ontologies of Neurological Conditions: Towards Patient-centered Data Practices in Digital Phenotyping Research and Design.Proceedings of the ACM on human-computer interaction · 2025Article
- Not whether but how: the ethics and Language of reporting back individual results.Environmental health : a global access science source · 2025Article
- Participant Experiences with Human Biomonitoring in Communities Affected by Chronic PFAS Environmental Contamination in the Veneto Region (Italy).International journal of environmental research and public health · 2025Article
- Empowering Citizens Through the Development and Deployment of a Community-Based Environmental Health Reporting Tool.Environmental justice (Print) · 2025Article
- Development and Outcomes of Returning Polycyclic Aromatic Hydrocarbon Exposure Results in the Washington Heights, NYC Community.Environmental health insights · 2024Article
- Moving Forward with Reporting Back Individual Environmental Health Research Results.Environmental health perspectives · 2023Article
- Invited Perspective: Making the Implicit Explicit-Connecting Environmental Health Literacy and Exposure Report-Back.Environmental health perspectives · 2023Article
- Article
- Addressing systemic problems with exposure assessments to protect the public's health.Environmental health : a global access science source · 2023Review
- Mi PROTECT: A personalized smartphone platform to report back results to participants of a maternal-child and environmental health research cohort program in Puerto Rico.PLOS digital health · 2023Article
- Perspectives of peripartum people on opportunities for personal and collective action to reduce exposure to everyday chemicals: Focus groups to inform exposure report-back.Environmental research · 2022Article
- Returning Individual Tap Water Testing Results to Research Study Participants after a Wildfire Disaster.International journal of environmental research and public health · 2022Article
- User-Centred Design of a Final Results Report for Participants in Multi-Sensor Personal Air Pollution Exposure Monitoring Campaigns.International journal of environmental research and public health · 2021Article
- MCR: Open-Source Software to Automate Compilation of Health Study Report-Back.International journal of environmental research and public health · 2021Article
- Article
- Participatory Research for Environmental Justice: A Critical Interpretive Synthesis.Environmental health perspectives · 2021Review
8 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
The recent flood of research concerning pollutants in personal environmental and biological samples-blood, urine, breastmilk, household dust and air, umbilical cord blood, and other media-raises questions about whether and how to report results to individual study participants. Clinical medicine provides an expert-driven framework, whereas community-based participatory research emphasizes participants' right to know and the potential to inform action even when health effects are uncertain. Activist efforts offer other models. We consider ethical issues involved in the decision to report individual results in exposure studies and what information should be included. Our discussion is informed by our experience with 120 women in a study of 89 pollutants in homes and by interviews with other researchers and institutional review board staff.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.