ArticleMedicine, health care, and philosophy2008
'In a completely different light'? The role of 'being affected' for the epistemic perspectives and moral attitudes of patients, relatives and lay people.
Article in Medicine, health care, and philosophy, 2008. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
15 citing papers in PubMed.
- Network Structure and Community Evolution Online: Behavioral and Emotional Changes in Response to COVID-19.Frontiers in public health · 2021Article
- "…This Has to Do With My Identity. And I Don't Want to Make it Totally Transparent." Identity Relevance in the Attitudes of Affected People and Laypersons to the Handling of High-Throughput Genomic Data.Frontiers in sociology · 2020Article
- Lessons From Italy's and Sweden's Policies in Fighting COVID-19: The Contribution of Biomedical and Social Competences.Frontiers in public health · 2020Article
- Involving Patient Groups in Drug Research: A Systematic Review of Reasons.Patient preference and adherence · 2020Article
- Illness and disease: an empirical-ethical viewpoint.BMC medical ethics · 2019Article
- Mitochondrial Replacement Techniques : Examining Collective Representation in Emerging Technologies Governance.Journal of bioethical inquiry · 2018Article
- Beyond cultural stereotyping: views on end-of-life decision making among religious and secular persons in the USA, Germany, and Israel.BMC medical ethics · 2017Article
- Understanding collective agency in bioethics.Medicine, health care, and philosophy · 2016Article
- "What the patient wants…": Lay attitudes towards end-of-life decisions in Germany and Israel.Medicine, health care, and philosophy · 2015Article
- The French bioethics public consultation and the anonymity doctrine: empirical ethics and normative assumptions.Monash bioethics review · 2015Article
- The ethics of 'public understanding of ethics'--why and how bioethics expertise should include public and patients' voices.Medicine, health care, and philosophy · 2012Article
- Client participation in moral case deliberation: a precarious relational balance.HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2011Article
- Diversity and uniformity in genetic responsibility: moral attitudes of patients, relatives and lay people in Germany and Israel.Medicine, health care, and philosophy · 2009Article
- Interpreting advance directives: ethical considerations of the interplay between personal and cultural identity.Health care analysis : HCA : journal of health philosophy and policy · 2009Article
- Why the way we consider the body matters - reflections on four bioethical perspectives on the human body.Philosophy, ethics, and humanities in medicine : PEHM · 2007Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In this paper, we explore and discuss the use of the concept of being affected in biomedical decision making processes in Germany. The corresponding German term 'Betroffenheit' characterizes on the one hand a relation between a state of affairs and a person and on the other an emotional reaction that involves feelings like concern and empathy with the suffering of others. An example for the increasing relevance of being affected is the postulation of the participation of people with disabilities and chronic or acute diseases in the discourse, as partly realized in the German National Ethics Council or the Federal Joint Committee. Nevertheless, not only on the political level, the resistance against the participation of affected people is still strong; the academic debate seems to be cross-grained, too. Against this background, we explore the meaning and argumentative role of the concept of being affected as it is used by affected and lay people themselves. Our analysis is based on four focus group discussions in which lay people, patients and relatives of patients discuss their attitudes towards biomedical interventions such as organ transplantation and genetic testing. This setting allows for a comparison of how affected and non-affected people are concerned and deliberate about medical opportunities, but also of how they position themselves as being affected or non-affected with respect to (scientific) knowledge and morality. On this basis, we discuss the normative relevance of being affected for the justification of political participation.
Indexed as
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.