ArticleHealth and quality of life outcomes2007
Quality of life of adult retinoblastoma survivors in the Netherlands.
Article in Health and quality of life outcomes, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 2 of them syntheses that pooled it.
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Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it, 55 citations in OpenAlex.
- Identifying determinants of quality of life of children with cancer and childhood cancer survivors: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2011Pooled it
- Quality of life in survivors of childhood cancer: a systematic review of the literature (2001-2008).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2009Pooled it
- Psychosocial outcomes and quality of life among school-age survivors of retinoblastoma.Pediatric blood & cancer · 2023Article
- Cognitive and Adaptive Functioning in Youth With Retinoblastoma: A Longitudinal Investigation Through 10 Years of Age.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2021Article
- A study analyzing the health-related quality of life of retinoblastoma survivors in India.Indian journal of ophthalmology · 2021Article
- Living with heritable retinoblastoma and the perceived role of regular follow-up at a retinoblastoma survivorship clinic: 'That is exactly what I have been missing'.BMJ open ophthalmology · 2021Article
- Impact of enucleation on adult retinoblastoma survivors' quality of life: A qualitative study of survivors' perspectives.Palliative & supportive care · 2020Article
- Number, frequency and time interval of examinations under anesthesia in bilateral retinoblastoma.Graefe's archive for clinical and experimental ophthalmology = Albrecht von Graefes Archiv fur klinische und experimentelle Ophthalmologie · 2020Article
- Quality of Life (QoL) and Psychosocial Outcomes in Adult Survivors of Unilateral Retinoblastoma (RB) in China.Journal of ophthalmology · 2020Article
- Vision-Targeted Health-Related Quality of Life in Adult Survivors of Retinoblastoma.JAMA ophthalmology · 2018Article
- Feasibility of RetinoQuest: e-health application to facilitate and improve additional care for retinoblastoma survivors.Journal of cancer survivorship : research and practice · 2017Article
- Chronic medical conditions in adult survivors of retinoblastoma: Results of the Retinoblastoma Survivor Study.Cancer · 2016Article
- Psychosocial Outcomes in Adult Survivors of Retinoblastoma.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2015Article
- Retinoblastoma.Nature reviews. Disease primers · 2015Review
- Management of retinoblastoma in children: current status.Paediatric drugs · 2015Review
- Trajectories of social isolation in adult survivors of childhood cancer.Journal of cancer survivorship : research and practice · 2014Article
- Health-related quality of life of child and adolescent retinoblastoma survivors in the Netherlands.Health and quality of life outcomes · 2007Article
- Article
- Health-Related Quality of Life in Adolescent and Young Adult Retinoblastoma Survivors.Journal of pediatric hematology/oncology nursingArticle
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Authors and funding
7 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundTo assess the quality of life (QoL) and predictors thereof in Dutch adult hereditary and non-hereditary retinoblastoma (RB) survivors.
methodsIn this population-based cross-sectional study, a generic QoL questionnaire (SF-36) and a disease-specific interview were administered to 87 adult RB survivors aged 18 to 35 years. Their QoL data were compared with those of a Dutch healthy reference group. Among the RB hereditary/non-hereditary survivors, the QoL was compared and predictors for QoL were identified by linear multiple regression analyses.
resultsAs a group, RB survivors scored significantly lower than the reference group on the SF-36 subscale 'mental health' (t = -27, df = 86, p < 0.01). Hereditary RB survivors scored lower on the subscale 'general health' (t = 2.6, df = 85, p < 0.01) than non-hereditary RB survivors. Having experienced bullying, as a child was a predictor for the SF-36 subscales: 'physical functioning' (p < 0.05), 'role functioning physical' (p < 0.01), 'role functioning emotional' (p < 0.05) and 'social functioning' (p < 0.01). Having experienced bullying (p < 0.01), but also subjective experience of impairment related to RB (p < 0.05), was predictors for 'general health'. Subjective experience of impairment was a predictor for 'vitality' (p < 0.01) and 'bodily pain' (p < 0.01).
conclusionIn this exploratory study, it appears that the group of adult RB survivors experience a relatively good overall but slightly decreased QoL compared with the reference group. However, they report more problems with regard to their mental health (anxiety, feelings of depression, and loss of control). Hereditary RB survivors differ significantly from non-hereditary RB survivors only in 'general health'. Bullying in childhood and subjective experience of impairment are the main predictors of a worse QoL. In order to prevent worsening of QoL, or perhaps to improve it, clinicians should make an inventory of these issues at an early stage. We recommend further research to assess the specific psychological factors that may lead to mental health problems in this population.
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