ArticleHealth expectations : an international journal of public participation in health care and health policy2007
User involvement in the development of a research bid: barriers, enablers and impacts.
Article in Health expectations : an international journal of public participation in health care and health policy, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 54 papers, 6 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
54 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Meaningful patient and public involvement in digital health innovation, implementation and evaluation: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2022Pooled it
- End-Users and Caregivers' Involvement in Health Interventional Research Carried Out in Geriatric Facilities: A Systematic Review.International journal of environmental research and public health · 2019Pooled it
- Patient and service user engagement in research: a systematic review and synthesized framework.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- Mapping the impact of patient and public involvement on health and social care research: a systematic review.Health expectations : an international journal of public participation in health care and health policy · 2014Pooled it
- Quality and acceptability of patient-reported outcome measures used in chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME): a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2012Pooled it
- Getting ready for user involvement in a systematic review.Health expectations : an international journal of public participation in health care and health policy · 2009Pooled it
- Attitudes and perceptions regarding knowledge translation and community engagement in medical research: the PERSPECT qualitative study.Health research policy and systems · 2025Article
- Is this really Empowerment? Enhancing our understanding of empowerment in patient and public involvement within clinical research.BMC medical research methodology · 2024Article
- Patient and public involvement and engagement (PPIE): how valuable and how hard? An evaluation of ALL_EARS@UoS PPIE group, 18 months on.Research involvement and engagement · 2024Article
- How do trial teams plan for retention during the design stage of the trial? A scoping review.Trials · 2023Article
- Developing a research community within an online healthcare feedback platform.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Online comic-based art workshops as an innovative patient and public involvement and engagement approach for people with chronic breathlessness.Research involvement and engagement · 2023Article
- A qualitative evaluation of coproduction of research: 'If you do it properly, you will get turbulence'.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Patient, Caregiver, and Clinician Participation in Prioritization of Research Questions in Pediatric Hospital Medicine.JAMA network open · 2022Article
- Involving and engaging pregnant women in maternity-related research: reflections on an innovative approach.Research involvement and engagement · 2021Article
- Use of the ADAPTE method to develop a clinical guideline for the improvement of psychoses and schizophrenia care: Example of involvement and participation of patients and family caregivers.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Involving service users in the Birth Timing project, a data linkage study analysing the timing of births and their outcomes.International journal of population data science · 2020Article
- Patient and Public Involvement in Sexual and Reproductive Health: Time to Properly Integrate Citizen's Input into Science.International journal of environmental research and public health · 2020Article
- Conducting research in psoriatic arthritis: the emerging role of patient research partners.Rheumatology (Oxford, England) · 2020Review
- Patient-oriented research competencies in health (PORCH) for researchers, patients, healthcare providers, and decision-makers: results of a scoping review.Research involvement and engagement · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo involve users in the development of a research bid to examine parents' experiences of having a pre-term baby, and to examine the barriers, enablers and impacts of user involvement.
designA mainly collaborative approach to user involvement was adopted, although different types of involvement were evident at different stages of the project. Users' experiences and perspectives provided the focus for the regular meetings which underpinned the writing of the research bid. The researcher acted as a facilitator in the development of the bid, with input from users and the wider advisory group. MAIN OUTCOMES: User involvement had an important impact on the development of the research aims, methods and on ethical aspects. Through careful collaboration a research bid was produced which was rooted in users' experiences, whilst also addressing key research questions. Key enablers for involvement included good working relationships, funding for the lead researchers time. Barriers included lack of financial support for users, the time-consuming nature of involvement and the language of research.
conclusionsIf user involvement remains an international policy imperative with little if any support at the vital stage of bid development, policy-makers, service user organizations, researchers, health service providers and commissioners will need to recognize the limited nature of involvement that may result and the impact this would have on the evidence base. Researchers will need to recognize the resource implications of involvement at this point, and user groups will need to decide whether to participate when there is the greatest chance of influencing research but little or no funding.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.