ArticleJournal of medical Internet research2007
User-centered research on breast cancer patient needs and preferences of an Internet-based clinical trial matching system.
Article in Journal of medical Internet research, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.
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Who cites it
15 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Employing computers for the recruitment into clinical trials: a comprehensive systematic review.Journal of medical Internet research · 2014Pooled it
- Assessing the impact of user-centered research on a clinical trial eHealth tool via counterbalanced research design.Journal of the American Medical Informatics Association : JAMIATrial
- A Digital Intervention to Improve Skin Self-Examination Among Survivors of Melanoma: Protocol for a Type-1 Hybrid Effectiveness-Implementation Randomized Trial.JMIR research protocols · 2024Article
- Overcoming Barriers to Clinical Trial Participation: Outcomes of a National Clinical Trial Matching and Navigation Service for Patients With a Blood Cancer.JCO oncology practice · 2021Article
- Usefulness and Usability of a Personal Health Record and Survivorship Care Plan for Colorectal Cancer Survivors: Survey Study.JMIR cancer · 2019Article
- A bilingual, Internet-based, targeted advertising campaign for prostate cancer clinical trials: Assessing the feasibility, acceptability, and efficacy of a novel recruitment strategy.Contemporary clinical trials communications · 2018Article
- Dynamic software design for clinical exome and genome analyses: insights from bioinformaticians, clinical geneticists, and genetic counselors.Journal of the American Medical Informatics Association : JAMIA · 2016Article
- Development of an Internet Intervention to Address Behaviors Associated with Skin Cancer Risk among Young Adults.Internet interventions · 2015Article
- Testing the Electronic Personal Health Record Acceptance Model by Nurses for Managing Their Own Health: A Cross-sectional Survey.Applied clinical informatics · 2015Article
- Adoption, acceptability, and accuracy of an online clinical trial matching website for breast cancer.Journal of medical Internet research · 2012Article
- Consumer input into research: the Australian Cancer Trials website.Health research policy and systems · 2011Article
- Article
- Patient internet use surrounding cancer clinical trials: clinician perceptions and responses.Contemporary clinical trials · 2010Article
- Using the Internet to search for cancer clinical trials: a comparative audit of clinical trial search tools.Contemporary clinical trials · 2008Article
- Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInternet-based clinical trial matching systems have the potential to streamline the search process for women with breast cancer seeking alternative treatments. A prototype system was developed to leverage the capabilities of a personal health record system for the purpose of identifying clinical trials.
objectiveThis study examines how breast cancer patients perceive and interact with a preliminary version of an Internet-based clinical trial matching system, while taking into account the demands of diagnosis and treatment decision making.
methodsBreast cancer patients participated in small group discussions and interacted with the prototype website in a two-phase qualitative research process. The first phase explored the experience of breast cancer patients (n = 8) with treatment decision making, initial responses to the idea of Internet-based clinical trial matching systems, and reactions to the prototype site. In the second phase, a different set of breast cancer patients (n = 7) reviewed revised website content and presentation and participated in a usability test in which they registered on the system and completed a personal health record to set up the matching process.
resultsParticipants were initially skeptical of the prototype system because it emphasized registration, had a complicated registration process, and asked for complex medical information. Changing content and attending to usability guidelines improved the experience for women in the second phase of the research and enabled the identification of functionality and content issues, such as lack of clear information and directions on how to use the system.
conclusionsThis study showed that women felt favorably about the idea of using the Internet to search for clinical trials but that such a system needed to meet their expectations for credibility and privacy and be sensitive to their situation. Developers can meet these expectations by conforming to established usability guidelines and testing improvements with breast cancer patients. Future research is needed to verify these findings and to continue to improve systems of this nature.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.