ArticleJournal of the American Medical Informatics Association : JAMIA
Issues in biomedical research data management and analysis: needs and barriers.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 46 papers.
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Who cites it
46 citing papers in PubMed.
- Multi-site research using electronic health record data: Lessons learned from a case study.Learning health systems · 2025Article
- Integrated data-driven biotechnology research environments.Database : the journal of biological databases and curation · 2025Review
- Bioinformatics proficiency among African students.Frontiers in bioinformatics · 2024Article
- Study Protocol for a Hospital-to-Home Transitional Care for Older Adults Hospitalized with Chronic Obstructive Pulmonary Disease in South Korea: A Randomized Controlled Trial.International journal of environmental research and public health · 2023Article
- An Ontology-Based Approach for Consolidating Patient Data Standardized With European Norm/International Organization for Standardization 13606 (EN/ISO 13606) Into Joint Observational Medical Outcomes Partnership (OMOP) Repositories: Description of a Methodology.JMIR medical informatics · 2023Article
- Electronic Data Capture System (REDCap) for Health Care Research and Training in a Resource-Constrained Environment: Technology Adoption Case Study.JMIR medical informatics · 2022Article
- Web-Based Application for Biomedical Image Registry, Analysis, and Translation (BiRAT).Tomography (Ann Arbor, Mich.) · 2022Article
- Article
- Knowledge integration and decision support for accelerated discovery of antibiotic resistance genes.Nature communications · 2022Article
- Data Management Plans in the genomics research revolution of Africa: Challenges and recommendations.Journal of biomedical informatics · 2021Review
- Human OMICs and Computational Biology Research in Africa: Current Challenges and Prospects.Omics : a journal of integrative biology · 2021Article
- A scoping review of qualitative research in JAMIA: past contributions and opportunities for future work.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- A cloud-based bioinformatic analytic infrastructure and Data Management Core for the Expanded Program on Immunization Consortium.Journal of clinical and translational science · 2020Article
- A semi-automated pipeline for fulfillment of resource requests from a longitudinal Alzheimer's disease registry.JAMIA open · 2019Article
- Adapting data management education to support clinical research projects in an academic medical center.Journal of the Medical Library Association : JMLA · 2019Article
- Toolbox for Research, or how to facilitate a central data management in small-scale research projects.Journal of translational medicine · 2018Article
- Roadmap to a Comprehensive Clinical Data Warehouse for Precision Medicine Applications in Oncology.Cancer informatics · 2017Article
- Interactive knowledge discovery with the doctor-in-the-loop: a practical example of cerebral aneurysms research.Brain informatics · 2016Article
- Resolving complex research data management issues in biomedical laboratories: Qualitative study of an industry-academia collaboration.Computer methods and programs in biomedicine · 2016Article
- CIMIDx: Prototype for a Cloud-Based System to Support Intelligent Medical Image Diagnosis With Efficiency.JMIR medical informatics · 2015Article
Corrections and comments
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Authors and funding
7 authors.
Funding
Abstract
objectivesA. Identify the current state of data management needs of academic biomedical researchers. B. Explore their anticipated data management and analysis needs. C. Identify barriers to addressing those needs.
designA multimodal needs analysis was conducted using a combination of an online survey and in-depth one-on-one semi-structured interviews. Subjects were recruited via an e-mail list representing a wide range of academic biomedical researchers in the Pacific Northwest. MEASUREMENTS: The results from 286 survey respondents were used to provide triangulation of the qualitative analysis of data gathered from 15 semi-structured in-depth interviews.
resultsThree major themes were identified: 1) there continues to be widespread use of basic general-purpose applications for core data management; 2) there is broad perceived need for additional support in managing and analyzing large datasets; and 3) the barriers to acquiring currently available tools are most commonly related to financial burdens on small labs and unmet expectations of institutional support.
conclusionThemes identified in this study suggest that at least some common data management needs will best be served by improving access to basic level tools such that researchers can solve their own problems. Additionally, institutions and informaticians should focus on three components: 1) facilitate and encourage the use of modern data exchange models and standards, enabling researchers to leverage a common layer of interoperability and analysis; 2) improve the ability of researchers to maintain provenance of data and models as they evolve over time though tools and the leveraging of standards; and 3) develop and support information management service cores that could assist in these previous components while providing researchers with unique data analysis and information design support within a spectrum of informatics capabilities.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.