ArticleJournal of the American Medical Informatics Association : JAMIA
A self-scaling, distributed information architecture for public health, research, and clinical care.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Clinical research data warehouse governance for distributed research networks in the USA: a systematic review of the literature.Journal of the American Medical Informatics Association : JAMIAPooled it
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- Large Language Model Symptom Identification From Clinical Text: Multicenter Study.Journal of medical Internet research · 2025Article
- Study protocol: a mixed-methods study of the implementation of doula care to address racial health equity in six state Medicaid programs.Health research policy and systems · 2024Article
- Cumulus: a federated electronic health record-based learning system powered by Fast Healthcare Interoperability Resources and artificial intelligence.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Cumulus: A federated EHR-based learning system powered by FHIR and AI.medRxiv : the preprint server for health sciences · 2024Article
- Factors Influencing the Acceptance of Distributed Research Networks in Korea: Data Accessibility and Data Security Risk.Healthcare informatics research · 2023Article
- Innovative Solutions for State Medicaid Programs to Leverage Their Data, Build Their Analytic Capacity, and Create Evidence-Based Policy.EGEMS (Washington, DC) · 2019Article
- A Federated Network for Translational Cancer Research Using Clinical Data and Biospecimens.Cancer research · 2015Review
- Federalist principles for healthcare data networks.Nature biotechnology · 2015Article
- The Southeastern Minnesota Beacon Project for Community-driven Health Information Technology: Origins, Achievements, and Legacy.EGEMS (Washington, DC) · 2014Article
- Improved de-identification of physician notes through integrative modeling of both public and private medical text.BMC medical informatics and decision making · 2013Article
- Federated queries of clinical data repositories: the sum of the parts does not equal the whole.Journal of the American Medical Informatics Association : JAMIA · 2013Article
- Patient-controlled sharing of medical imaging data across unaffiliated healthcare organizations.Journal of the American Medical Informatics Association : JAMIA · 2013Article
- Article
- An i2b2-based, generalizable, open source, self-scaling chronic disease registry.Journal of the American Medical Informatics Association : JAMIA · 2013Article
- A pragmatic framework for single-site and multisite data quality assessment in electronic health record-based clinical research.Medical care · 2012Article
- An informatics solution for informing care delivery of immediate public health risks to their patients.Online journal of public health informatics · 2009Article
- Health information technology will shift the medical care paradigm.Journal of general internal medicine · 2008Article
- The Shared Health Research Information Network (SHRINE): a prototype federated query tool for clinical data repositories.Journal of the American Medical Informatics Association : JAMIAArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
objectiveThis study sought to define a scalable architecture to support the National Health Information Network (NHIN). This architecture must concurrently support a wide range of public health, research, and clinical care activities. STUDY
designThe architecture fulfils five desiderata: (1) adopt a distributed approach to data storage to protect privacy, (2) enable strong institutional autonomy to engender participation, (3) provide oversight and transparency to ensure patient trust, (4) allow variable levels of access according to investigator needs and institutional policies, (5) define a self-scaling architecture that encourages voluntary regional collaborations that coalesce to form a nationwide network.
resultsOur model has been validated by a large-scale, multi-institution study involving seven medical centers for cancer research. It is the basis of one of four open architectures developed under funding from the Office of the National Coordinator of Health Information Technology, fulfilling the biosurveillance use case defined by the American Health Information Community. The model supports broad applicability for regional and national clinical information exchanges.
conclusionsThis model shows the feasibility of an architecture wherein the requirements of care providers, investigators, and public health authorities are served by a distributed model that grants autonomy, protects privacy, and promotes participation.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.