Trial reportJournal of genetic counseling2007
Knowledge and expectations of women undergoing cancer genetic risk assessment: a qualitative analysis of free-text questionnaire comments.
Trial report in Journal of genetic counseling, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 28 citations in OpenAlex.
- Do women with a history of breast cancer recommend risk-based breast cancer screening? An in-depth interview study.Frontiers in psychology · 2025Article
- What matters to you? - Free-text comments in a questionnaire from patients undergoing radiotherapy.Technical innovations & patient support in radiation oncology · 2020Article
- Young Women's Perceptions Regarding Communication with Healthcare Providers About Breast Cancer, Risk, and Prevention.Journal of women's health (2002) · 2018Article
- Article
- Lynch Syndrome Limbo: Patient Understanding of Variants of Uncertain Significance.Journal of genetic counseling · 2017Article
- Patient perspectives on delays in diagnosis and treatment of cancer: a qualitative analysis of free-text data.The British journal of general practice : the journal of the Royal College of General Practitioners · 2017Article
- Article
- Closing the loop: action research in a multimodal hereditary cancer patient conference is an effective tool to assess and address patient needs.Journal of cancer education : the official journal of the American Association for Cancer Education · 2012Article
- Descriptive and numeric estimation of risk for psychotic disorders among affected individuals and relatives: implications for clinical practice.Psychiatry research · 2012Article
- An online resource of digital stories about cancer genetics: qualitative study of patient preferences and information needs.Journal of medical Internet research · 2011Article
- Article
- Beliefs and beyond: what can we learn from qualitative studies of lay people's understandings of cancer risk?Health expectations : an international journal of public participation in health care and health policy · 2010Article
- Women's perceptions of the personal and family impact of genetic cancer risk assessment: focus group findings.Journal of genetic counseling · 2010Article
- The effect of BRCA gene testing on family relationships: A thematic analysis of qualitative interviews.Journal of genetic counseling · 2009Article
- Factors associated with intrusive cancer-related worries in women undergoing cancer genetic risk assessment.Familial cancer · 2009Article
- Health behaviors and psychological distress in women initiating BRCA1/2 genetic testing: comparison with control population.Journal of genetic counseling · 2008Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Individuals undergoing cancer genetic risk assessment have been found to have a poor understanding of the process, which may affect how well they cope with learning their risk. This paper reports free-text data from questionnaires completed by women undergoing a randomised controlled trial of a psychological intervention. Of the 268 women undergoing genetic assessment for familial breast/ovarian cancer risk who were invited to take part in the trial, 157 women returned research questionnaires. Of these, 97 women provided free-text comments upon referral to a cancer genetics clinic, 62 provided comments whilst waiting for risk information (average, moderate or high), and 36 women provided comments following notification of risk. This paper reports a thematic analysis of the free-text data. Themes reflected individuals' poor knowledge and uncertainty about genetic risk assessment. How well individuals responded to learning their risk depended upon whether expectations had been met. Regardless of risk, individuals undergoing cancer genetic risk assessment are likely to benefit from increased information about its process and timescales, and access to increased psychological support. Free-text comments can provide valuable data about individuals' expectations and knowledge of genetics services.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.