ReviewQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2007
Twelve years' experience with the Patient Generated Index (PGI) of quality of life: a graded structured review.
Review in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2007. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The use, feasibility and psychometric properties of an individualised quality-of-life instrument: a systematic review of the SEIQoL-DW.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2009Pooled it
- Evaluating women's experiences and satisfaction with labour induction in India: a comparison of the participant generated experience and satisfaction (PaGES) index with standard methods.BMC pregnancy and childbirth · 2025Trial
- Responsiveness of SF-36 Health Survey and Patient Generated Index in people with chronic knee pain commenced on oral analgesia: analysis of data from a randomised controlled clinical trial.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2017Trial
- The feasibility and acceptability of using the Mother-Generated Index (MGI) as a Patient Reported Outcome Measure in a randomised controlled trial of maternity care.BMC medical research methodology · 2015Trial
- Evaluation of a structured goal planning and tailored follow-up programme in rehabilitation for patients with rheumatic diseases: protocol for a pragmatic, stepped-wedge cluster randomized trial.BMC musculoskeletal disorders · 2014Trial
- Real-World Effectiveness and Safety of Intra-Articular Polynucleotide for Knee Osteoarthritis: Large Multicenter Observational Study with Repeated Treatment.Journal of clinical medicine · 2026Article
- Patient-reported Outcome Measures in Pediatric Orthopaedics.Journal of the Pediatric Orthopaedic Society of North America · 2025Review
- Adaptation and content validation of measure yourself medical outcomes profile (MYMOP) for 7-11 year-old children.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- The Relationship between Supportive Care Needs and Health-Related Quality of Life in Cancer Patients.Healthcare (Basel, Switzerland) · 2023Article
- Supportive care needs and health-related quality of life in cancer patients receiving palliative care.Frontiers in psychology · 2023Article
- Tailoring Pain Interference Measurement in People with Cancer: A Feasibility Study.Journal of pain and symptom management · 2022Article
- Importance of and Satisfaction with Domains of Health-Related Quality of Life in Cancer Rehabilitation.Cancers · 2022Article
- Quality of Life Domains in Breast Cancer Survivors: The Relationship Between Importance and Satisfaction Ratings.Frontiers in psychology · 2022Article
- Content validity of preference-based measures for economic evaluation in chronic obstructive pulmonary disease.Health and quality of life outcomes · 2021Article
- Do Generic Preference-Based Measures Accurately Capture Areas of Health-Related Quality of Life Important to Individuals with Amyotrophic Lateral Sclerosis: A Content Validation Study.Patient related outcome measures · 2021Article
- Web-Based Health Coaching for Spinal Cord Injury: Results From a Mixed Methods Feasibility Evaluation.JMIR rehabilitation and assistive technologies · 2020Article
- Article
- Validation of an Individualized Measure of Quality of Life, Patient Generated Index, for Use with People with Parkinson's Disease.Neurology research international · 2020Article
- Article
- Individualized health-related quality of life instrument Measure Yourself Medical Outcome Profile (MYMOP) and its adaptations: a critical appraisal.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2019Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The Patient Generated Index (PGI) is an individualised quality of life (QoL) measure that has been in use since 1994. Various adaptations have been made to suit a variety of client groups. The PGI's psychometric properties have been studied but their review is necessary to inform instrument choice. This article provides a structured review, using grading criteria adapted from those developed to aid outcome measure selection for use with older people. These criteria grade quality of evidence and strength of findings for psychometric validity, providing a useful model for future reviews. All published articles providing data addressing validity, reliability and/or responsiveness were included in the review. Eighteen relevant articles were identified and analysed using the grading criteria. Variable results and quality of investigation were seen. Generally the measure was found to be adequately reliable for group comparisons. The PGI appeared valid but evidence for responsiveness was unclear. Those versions of the measure using fewer points in their Likert scales may have higher reliability. Cognitions involved in QoL judgements remain little understood and investigations of psychometric properties may be enhanced by examination of appraisal processes.
Indexed as
Identifiers
17268928What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.