ArticlePalliative medicine2006
Towards using administrative databases to measure population-based indicators of quality of end-of-life care: testing the methodology.
Article in Palliative medicine, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 56 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
56 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Quality measures for palliative care in patients with cancer: a systematic review.Journal of oncology practice · 2014Pooled it
- Development of a set of process and structure indicators for palliative care: the Europall project.BMC health services research · 2012Pooled it
- Socioeconomic differences in the intensity of end-of-life care among patients with cancer: a population-based study in the Lazio region, Italy.European journal of public health · 2026Observational
- Elective admissions and treatments in the final three months of life: a nationwide retrospective study of older adults.European geriatric medicine · 2026Article
- Stakeholder consensus of quality indicators for end-of-life cancer care in Malaysia: a modified Delphi study.BMC palliative care · 2025Article
- Understanding challenges and barriers to quality end-of-life care for patients with hematologic malignancies: a GIMEMA survey.Annals of hematology · 2025Article
- Quality of palliative and end-of-life care: a qualitative study of experts' recommendations to improve indicators in Quebec (Canada).BMC palliative care · 2024Article
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- Development of a set of quality indicators in paediatric and perinatal care in Japan with a modified Delphi method.BMJ paediatrics open · 2023Article
- Inappropriate end-of-life cancer care in a generalist and specialist palliative care model: a nationwide retrospective population-based observational study.BMJ supportive & palliative care · 2022Observational
- A multi-stage process to develop quality indicators for community-based palliative care using interRAI data.PloS one · 2022Article
- Primary palliative care for older people in three European countries: a mortality follow-back quality study.BMJ supportive & palliative care · 2020Article
- Development of comparable algorithms to measure primary care indicators using administrative health data across three Canadian provinces.International journal of population data science · 2020Article
- End-of-life care preferences of the general public and recommendations of healthcare providers: a nationwide survey in Japan.BMC palliative care · 2020Article
- Multicentre analysis of intensity of care at the end-of-life in patients with advanced cancer, combining health administrative data with hospital records: variations in practice call for routine quality evaluation.BMC palliative care · 2019Article
- End-of-life cost and its determinants for cancer patients in urban China: a population-based retrospective study.BMJ open · 2019Article
- Access to Palliative Care for Cancer Patients Living in a Northern and Rural Environment in Ontario, Canada: The Effects of Geographic Region and Rurality on End-of-Life Care in a Population-Based Decedent Cancer Cohort.Clinical Medicine Insights. Oncology · 2019Article
- Multi-province epidemiological research using linked administrative data: a case study from Canada.International journal of population data science · 2018Article
- Rural versus urban differences in end-of-life care for lung cancer patients in Germany.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2018Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors.
Funding
Abstract
This study is concerned with methods to measure population-based indicators of quality end-of-life care. Using a retrospective cohort approach, we assessed the feasibility, validity and reliability of using administrative databases to measure quality indicators of end-of-life care in two Canadian provinces. The study sample consisted of all females who died of breast cancer between 1 January 1998 and 31 December 2002, in Nova Scotia or Ontario, Canada. From an initial list of 19 quality indicators selected from the literature, seven were determined to be fully measurable in both provinces. An additional seven indicators in one province and three in the other province were partially measurable. Tests comparing administrative and chart data show a high level of agreement with inter-rater reliability, confirming consistency in the chart abstraction process. Using administrative data is an efficient, population-based method to monitor quality of care which can compliment other methods, such as qualitative and purposefully collected clinical data.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.