ArticleJournal of medical ethics2006
Non-reporting and inconsistent reporting of race and ethnicity in articles that claim associations among genotype, outcome, and race or ethnicity.
Article in Journal of medical ethics, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review.BMC palliative care · 2023Pooled it
- Pooled it
- Racial and Ethnic Representation Reporting in Orthopaedic Research.Journal of the American Academy of Orthopaedic Surgeons. Global research & reviews · 2026Article
- Access to Chronic Pain Services for Adults from Minority Ethnic Groups in the United Kingdom (UK): a Scoping Review.Journal of racial and ethnic health disparities · 2024Article
- Reporting of Race, Ethnicity, and Ancestry Remains Inadequate in Kidney Research.Kidney international reports · 2024Article
- Reassessing the Use of Race in Clinical Algorithms: An Interactive, Case-Based Session for Medical Students Using eGFR.MedEdPORTAL : the journal of teaching and learning resources · 2024Article
- Barriers and strategies for recruiting participants who identify as racial minorities in musculoskeletal health research: a scoping review.Frontiers in public health · 2023Article
- A scoping review of guidelines for the use of race, ethnicity, and ancestry reveals widespread consensus but also points of ongoing disagreement.American journal of human genetics · 2022Article
- Hospice Enrollment, Future Hospitalization, and Future Costs Among Racially and Ethnically Diverse Patients Who Received Palliative Care Consultation.The American journal of hospice & palliative care · 2022Article
- Surgical research journals - Under review: An assessment of diversity among editorial boards and outcomes of peer review.American journal of surgery · 2021Article
- The Reporting of Race and Ethnicity in Surgery Literature.JAMA surgery · 2021Article
- Advancing the science on cannabis concentrates and behavioural health.Drug and alcohol review · 2021Review
- Call to Action for Enhanced Equity and Inclusion in Cannabis Research.Cannabis and cannabinoid research · 2021Article
- Diversity of Enrollment in Prostate Cancer Clinical Trials: Current Status and Future Directions.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2020Article
- Comparing Obesity-Related Health Disparities among Native Hawaiians/Pacific Islanders, Asians, and Whites in California: Reinforcing the Need for Data Disaggregation and Operationalization.Hawai'i journal of medicine & public health : a journal of Asia Pacific Medicine & Public Health · 2016Article
- Ethnicity reporting practices for empirical research in three autism-related journals.Journal of autism and developmental disorders · 2014Article
- Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?Social science & medicine (1982) · 2012Article
- Characterization of clinical study populations by race and ethnicity in biomedical literature.Ethnicity & disease · 2012Article
- The use of race, ethnicity and ancestry in human genetic research.The HUGO journal · 2011Article
- A critical review of racial/ethnic variables in osteoporosis and bone density research.Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA · 2011Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe use of race as a category in medical research is the focus of an intense debate, complicated by the inconsistency of presumed independent variables, race and ethnicity, on which analysis depends. Interpretation is made difficult by inconsistent methods for determining the race or ethnicity of a participant. The failure to specify how race or ethnicity was determined is common in the published literature. HYPOTHESIS: Criteria by which they assign a research participant to racial or ethnic categories are not reported by published articles.
methodsMethods were reviewed for assigning race and ethnicity of research participants in 268 published reports reporting associations among race (or ethnicity), health outcome and genotype.
resultsOf the 268 published reports reviewed, it was found that 192 (72%) did not explain their methods for assigning race or ethnicity as an independent variable. This was despite the fact that 180 (67%) of those reports reached conclusions about associations among genetics, health outcome and race or ethnicity.
conclusionsMore attention needs to be given to the definition of race and ethnicity in genetic studies, especially in those diseases where health disparities are known to exist.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.