ReviewAmerican journal of public health2006
Public willingness to participate in and public opinions about genetic variation research: a review of the literature.
Review in American journal of public health, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 43 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
43 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Attitudes and beliefs regarding race-targeted genetic testing of Black people: A systematic review.Journal of genetic counseling · 2023Pooled it
- Barriers and facilitators to recruitment to a culturally-based dietary intervention among urban Hispanic breast cancer survivors.Journal of racial and ethnic health disparities · 2015Trial
- Predictors of consent to pharmacogenomics testing in the IDEAL study.Pharmacogenetics and genomics · 2013Trial
- Patient Perspectives and Demographic Factors Influencing Non-Participation in a Large Genomics Study.Mayo Clinic proceedings. Innovations, quality & outcomes · 2026Article
- Lessons Learned from the Pilot Phase of a Population-Wide Genomic Screening Program: Building the Base to Reach a Diverse Cohort of 100,000 Participants.Journal of personalized medicine · 2022Article
- Recruitment strategies and lessons learned from a large genetic study of African Americans.PLOS global public health · 2022Article
- The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage.Genetics in medicine : official journal of the American College of Medical Genetics · 2021Article
- Understanding Participation in Genetic Research Among Patients With Multiple Sclerosis: The Influences of Ethnicity, Gender, Education, and Age.Frontiers in genetics · 2020Article
- Attitudes Toward Genomic Testing and Prostate Cancer Research Among Black Men.American journal of preventive medicine · 2018Article
- Why Patients Decline Genomic Sequencing Studies: Experiences from the CSER Consortium.Journal of genetic counseling · 2018Article
- Saliva samples as a source of DNA for high throughput genotyping: an acceptable and sufficient means in improvement of risk estimation throughout mammographic diagnostics.European journal of medical research · 2018Article
- The genetic structure of the Belgian population.Human genomics · 2018Article
- Willingness to Participate in Longitudinal Research Among People with Chronic Pain Who Take Medical Cannabis: A Cross-Sectional Survey.Cannabis and cannabinoid research · 2018Article
- Review: Genetic research on alcohol use outcomes in African American populations: A review of the literature, associated challenges, and implications.The American journal on addictions · 2017Review
- Cost and yield considerations when expanding recruitment for genetic studies: the primary open-angle African American glaucoma genetics study.BMC medical research methodology · 2017Article
- Leaves imitate trees: Minnesota Hmong concepts of heredity and applications to genomics research.Journal of community genetics · 2017Article
- Effects of racial and ethnic group and health literacy on responses to genomic risk information in a medically underserved population.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2015Article
- Article
- Genetic research participation in a young adult community sample.Journal of community genetics · 2014Article
- Factors affecting maternal participation in the genetic component of the National Birth Defects Prevention Study-United States, 1997-2007.Genetics in medicine : official journal of the American College of Medical Genetics · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Scientists are turning to genetic variation research in hopes of addressing persistent racial/ethnic disparities in health. Despite ongoing controversy, the advancement of genetic variation research is likely to produce new knowledge and technologies that will substantially change the ways in which we understand and value health. They also may affect the ways in which individuals and groups organize socially, politically, and economically. Addressing concerns that may exist in different communities is vital to the scientific and ethical advancement of genetic variation research. We review empirical studies of public willingness to participate in and opinions about genetic research with particular attention to differences in consent and opinion by racial/ethnic group membership.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.