ArticleAmerican journal of public health2006
Exploring the ethics of clinical research in an urban community.
Article in American journal of public health, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
12 citing papers in PubMed.
- Article
- The ethics of uninsured participants accessing healthcare in biomedical research: A literature review.Clinical trials (London, England) · 2018Review
- Supporting the role of community members employed as research staff: Perspectives of community researchers working in addiction research.Social science & medicine (1982) · 2017Article
- Conducting Health Disparities Research with Criminal Justice Populations: Examining Research, Ethics, and Participation.Ethics & behavior · 2014Article
- Research participation as work: comparing the perspectives of researchers and economically marginalized populations.American journal of public health · 2012Article
- Patients' and community leaders' perceptions regarding conducting health behavior research in a diverse, urban clinic specializing in rheumatic diseases.Progress in community health partnerships : research, education, and action · 2012Article
- Increasing ethnic minority participation in substance abuse clinical trials: lessons learned in the National Institute on Drug Abuse's Clinical Trials Network.Cultural diversity & ethnic minority psychology · 2011Article
- Scientific research and the public trust.Science and engineering ethics · 2011Article
- Validating English- and Spanish-language patient-reported outcome measures in underserved patients with rheumatic disease.Arthritis research & therapy · 2011Article
- Addiction research ethics and the Belmont principles: do drug users have a different moral voice?Substance use & misuse · 2011Article
- Validation of English and Spanish-language versions of a screening questionnaire for rheumatoid arthritis in an underserved community.The Journal of rheumatology · 2008Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesWe consulted with representatives of an urban community in Washington, DC, about the ethics of clinical research involving residents of the community with limited access to health care.
methodsA semistructured community consultation was conducted with core members of the Health Partnership Program of the National Institute of Arthritis and Musculoskeletal and Skin Diseases. Three research case examples were discussed; questions and probes (a predetermined question or series of questions used to further investigate or follow-up a response) guided the discussion.
resultsThe community representatives who took part in the consultation were supportive of research and appreciated the opportunity to be heard. They noted the importance of respecting the circumstances, values, needs, and welfare of research participants; supported widely representative recruitment strategies; and cited the positive benefits of providing care or treatment to participants. Monitoring participants' welfare and ensuring care at a study's end were emphasized. Trust was a central theme; participants suggested several trust-enhancing strategies, including full disclosure of information and the involvement of advocates, physicians, and trusted church members.
conclusionsSeveral important strategies emerged for conducting ethical research in urban communities whose residents have limited access to health care.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.