ArticleIntensive care medicine2006
Difference in reported pre-morbid health-related quality of life between ARDS survivors and their substitute decision makers.
Article in Intensive care medicine, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 31 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
31 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Feasibility and reliability of frailty assessment in the critically ill: a systematic review.Critical care (London, England) · 2018Pooled it
- The influence of hospitalization or intensive care unit admission on declines in health-related quality of life.Annals of the American Thoracic Society · 2015Trial
- One year outcomes in patients with acute lung injury randomised to initial trophic or full enteral feeding: prospective follow-up of EDEN randomised trial.BMJ (Clinical research ed.) · 2013Trial
- Reliability of pre-admission patient-reported outcome measures postoperatively assessed via proxies: a prospective, multicenter observational study.Critical care (London, England) · 2025Observational
- Oncologists' perspective on advance directives, a French national prospective cross-sectional survey - the ADORE study.BMC medical ethics · 2024Article
- Elderly Patients and Management in Intensive Care Units (ICU): Clinical Challenges.Clinical interventions in aging · 2023Review
- Pre-Burn Health-Related Quality of Life: Patient and Partner Perspectives.European burn journal · 2022Article
- Comparative Impact of Depressive Symptoms and FEVAnnals of the American Thoracic Society · 2022Article
- Health-related quality of life in ICU survivors-10 years later.Scientific reports · 2021Article
- Interrater Reliability of the Clinical Frailty Scale by Geriatrician and Intensivist in Patients Admitted to the Intensive Care Unit.Canadian geriatrics journal : CGJ · 2020Article
- Participant Retention in Follow-Up Studies of Acute Respiratory Failure Survivors.Respiratory care · 2020Article
- Article
- Perspectives of survivors, families and researchers on key outcomes for research in acute respiratory failure.Thorax · 2018Article
- Refining Low Physical Activity Measurement Improves Frailty Assessment in Advanced Lung Disease and Survivors of Critical Illness.Annals of the American Thoracic Society · 2017Article
- Measuring and predicting long-term outcomes in older survivors of critical illness.Minerva anestesiologica · 2015Review
- ICU survivors show no decline in health-related quality of life after 5 years.Intensive care medicine · 2015Article
- Health-related quality of life scores after intensive care are almost equal to those of the normal population: a multicenter observational study.Critical care (London, England) · 2013Observational
- The effect of acute kidney injury on long-term health-related quality of life: a prospective follow-up study.Critical care (London, England) · 2013Observational
- Quality of life before intensive care using EQ-5D: patient versus proxy responses.Critical care medicine · 2013Article
- Spurious inferences about long-term outcomes: the case of severe sepsis and geriatric conditions.American journal of respiratory and critical care medicine · 2012Article
Corrections and comments
- Commented on by
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
contextSubstitute decision makers may consider the pre-morbid health status of their critically ill loved one when making treatment decisions on her/his behalf.
objectiveTo compare estimates of pre-morbid health-related quality of life (HRQOL) obtained from survivors of the acute respiratory distress syndrome (ARDS) with those of their substitute decision makers using the Short Form 36 (SF-36).
designProspective cohort study.
settingUniversity-affiliated intensive care unit in Toronto, Canada. PATIENTS: A sample of 46 ARDS survivors and their substitute decision makers drawn from a previously described cohort.
interventionsWe measured agreement and differences between responses on the SF-36 obtained from survivors (at 3 months after ICU discharge) and their substitute decision makers (at study entry). MEASUREMENTS AND
resultsAgreement was poor for all SF-36 components and differences reached significance in three domains. In multivariable analysis considering age; sex; Acute Physiology, Age, and Chronic Health Evaluation II score; and Lung Injury Score, only patient age was associated with the mean difference between estimates for the 'Mental Health' domain. On average, estimates of pre-morbid HRQOL obtained from substitute decision makers were lower than those obtained from survivors.
conclusionAgreement between estimates of pre-morbid HRQOL provided by ARDS survivors and their substitute decision makers was poor. Compared with survivors, proxies tended to provide lower estimates of pre-morbid HRQOL. Substitute decision making for incapacitated patients is an imperfect process during which family members may underestimate their loved ones' own perception of pre-morbid health status. Alternatively, survivors of critical illness may overestimate pre-morbid HRQOL.
Indexed as
Identifiers
16957904What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.