ArticleMedGenMed : Medscape general medicine2006
An ethno-medical perspective on research participation: a qualitative pilot study.
Article in MedGenMed : Medscape general medicine, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 73 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
73 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.American journal of public health · 2014Pooled it
- Participant engagement in a community based participatory research study to reduce alcohol use among Latino immigrant men.Health education research · 2020Trial
- Recruitment and enrollment of African Americans and Caucasians in a health promotion trial for persons with serious mental illness.Ethnicity & disease · 2015Trial
- Improving Diabetes Health Literacy by Animation.The Diabetes educator · 2014Trial
- Recruiting hospitalized Mexican American elder adults and caregivers: challenges and strategies.Research in gerontological nursing · 2013Trial
- A randomized trial to assess the effect of a research informational pamphlet on telephone survey completion rates among older Latinos.Contemporary clinical trials · 2012Trial
- Mapping the path to diversity in clinical trials: a qualitative study of community member and stakeholder perspectives.BMC public health · 2025Article
- "What's the fun in That?": Latinx Families' Facilitators and Barriers to Virtual Research Participation.Hispanic health care international : the official journal of the National Association of Hispanic Nurses · 2025Article
- Capturing Movement Behaviors in Latinas: Feasibility, Validity, and Acceptability Study of an Ecological Momentary Assessment Protocol.JMIR human factors · 2025Article
- Generalizability of tau and amyloid plasma biomarkers in Alzheimer's disease cohorts of diverse genetic ancestries.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Learning Barriers, Engagement, and Interests Among Low-Income Latino Older Adults: Highlighting the Privilege of Learning and Retirement.Journal of aging and health · 2025Article
- Sangre Por Salud (SPS) Biobank: cohort profile.BMJ open · 2025Article
- Winning hearts & minds: prostate cancer outreach and clinical trial enrollment in minority men.Translational cancer research · 2024Review
- Community-Engaged Approaches for Improving the Inclusion of Diverse Communities in a Nutrition Clinical Trial.Nutrients · 2024Article
- Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives.Research involvement and engagement · 2024Review
- Article
- Generalizability of Tau and Amyloid Plasma Biomarkers in Alzheimer's Disease Cohorts of Diverse Genetic Ancestries.medRxiv : the preprint server for health sciences · 2024Article
- Analysis of factors associated with patient-reported outcome (PRO) score completion rate one year after shoulder surgeries.JSES international · 2024Article
- An intersectionality framework for identifying relevant covariates in health equity research.Frontiers in public health · 2024Review
- Spillover Effects of COVID-19 News Coverage on Willingness to Participate in Medical Research in a Diverse Sample of US Older Adults.Communication research · 2023Article
13 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
backgroundRecruitment of racial/ethnic minorities for clinical research continues to be problematic, yet critical to ensuring that research data will be applicable to diverse populations. There is a paucity of information about culturally appropriate methods for recruiting and retaining racial/ethnic minorities in research.
objectiveTo cross-culturally assess perceptions of research participation by African American and immigrant Latinos living in the inner-city community of Watts, Los Angeles, California, using qualitative methods.
designFocus groups using ethnically matched moderators were convened with African American and immigrant Latino participants. Discussion was facilitated using a script that focused on perceived "feelings" and "perceptions" about research. Discussions were audiotaped, transcribed, and analyzed using manual and computerized statistically based software (mixed) methods.
resultsAfrican Americans and immigrant Latinos shared several barriers and motivators to research. However, they also reported barriers and motivators to research that were distinct to each group. Latinos were more interested in healthcare and health information, and African Americans were more concerned with issues of trust and quality of care. Most participants said they would participate in research if they were better informed, or if they or a family member had an illness. Improving communication was reported as being important for motivating participation in clinical research. Overall, socioecologically and socioeconomically based domains were shared, whereas historically and/or socioculturally based domains were distinct.
conclusionsUsing an ethno-medical science model, we demonstrated that it is possible to identify shared barriers and motivators to research participation between 2 distinct cultural groups. This approach can be useful in developing targeted community-based strategies to increase minority participation in clinical trials.
Indexed as
Identifiers
16926762PMC1785211What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.