ArticleJournal of genetic counseling2006
Predictive testing of eighteen year olds: counseling challenges.
Article in Journal of genetic counseling, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 1 synthesis or guideline pooled it, 40 citations in OpenAlex.
- Impact of presymptomatic genetic testing on young adults: a systematic review.European journal of human genetics : EJHG · 2016Pooled it
- Family communication challenges of adolescents and young adults with Li-Fraumeni syndrome: Implications for psychosocial care.Patient education and counseling · 2022Article
- Families with complex needs: an inside perspective from young people, their carers, and healthcare providers.Journal of community genetics · 2022Article
- A framework for youth-friendly genetic counseling.Journal of community genetics · 2020Article
- Presymptomatic genetic testing for hereditary cancer in young adults: a survey of young adults and parents.European journal of human genetics : EJHG · 2019Article
- Ethics in genetic counselling.Journal of community genetics · 2019Review
- Experiences of Women Who Have Had Carrier Testing for Duchenne Muscular Dystrophy and Becker Muscular Dystrophy During Adolescence.Journal of genetic counseling · 2018Article
- Decision making and experiences of young adults undergoing presymptomatic genetic testing for familial cancer: a longitudinal grounded theory study.European journal of human genetics : EJHG · 2018Article
- Experience with genetic counseling: the adolescent perspective.Journal of genetic counseling · 2016Article
- Experiences of Women Who Underwent Predictive BRCA 1/2 Mutation Testing Before the Age of 30.Journal of genetic counseling · 2016Article
- Can we test for hereditary cancer at 18 years when we start surveillance at 25? Patient reported outcomes.Familial cancer · 2013Article
- "There's a whole different way of working with adolescents": interviews with Australian Genetic Counselors about their experiences with adolescent clients.Journal of genetic counseling · 2013Article
- Counseling adolescents and the challenges for genetic counselors.Journal of genetic counseling · 2012Article
- Cool, but is it credible? Adolescents' and parents' approaches to genetic testing.Western journal of nursing research · 2010Article
- The challenge of developmentally appropriate care: predictive genetic testing in young people for familial adenomatous polyposis.Familial cancer · 2010Article
- Brief assessment of parents' attitudes toward testing minor children for hereditary breast/ovarian cancer genes: development and validation of the Pediatric BRCA1/2 Testing Attitudes Scale (P-TAS).Journal of pediatric psychology · 2009Article
- Adolescent carrier testing in practice: the impact of legal rulings and problems with "gillick competence".Journal of genetic counseling · 2008Article
- Experiences of teens living in the shadow of Huntington Disease.Journal of genetic counseling · 2008Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Genetic counseling of teenagers is challenging and complex. The ability to think abstractly, a sense of self and independence from family all develop during adolescence. Predictive genetic testing counseling protocols presuppose that these qualities exist, requiring the at-risk individual to consider the short and long term consequences of testing as well as their motivations. Eighteen year olds are in transition from adolescence to adulthood; eligible for predictive genetic testing, they may not yet be independent of their family or able to articulate their feelings. This paper presents case studies from the authors' clinical practice to illustrate some of the difficulties faced by genetic counselors when 18 year olds request predictive testing for Hereditary Non-Polyposis Colorectal Cancer. By reflecting upon their experiences with these young adults and their families, the authors' intention is to generate discussion about genetic counseling strategies, particularly for predictive genetic testing, that are both age-appropriate and family-sensitive.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.