ArticleJournal of general internal medicine2006
"Why take it if you don't have anything?" breast cancer risk perceptions and prevention choices at a public hospital.
Article in Journal of general internal medicine, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 37 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
37 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Factors affecting uptake and adherence to breast cancer chemoprevention: a systematic review and meta-analysis.Annals of oncology : official journal of the European Society for Medical Oncology · 2016Pooled it
- Patient decisions about breast cancer chemoprevention: a systematic review and meta-analysis.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2010Pooled it
- Patient and Provider Web-Based Decision Support for Breast Cancer Chemoprevention: A Randomized Controlled Trial.Cancer prevention research (Philadelphia, Pa.) · 2022Trial
- Perceptions of Racially and Ethnically Diverse Women at High Risk of Breast Cancer Regarding the Use of a Web-Based Decision Aid for Chemoprevention: Qualitative Study Nested Within a Randomized Controlled Trial.Journal of medical Internet research · 2021Trial
- Informed choice about breast cancer prevention: randomized controlled trial of an online decision aid intervention.Breast cancer research : BCR · 2013Trial
- Women's interest in taking tamoxifen and raloxifene for breast cancer prevention: response to a tailored decision aid.Breast cancer research and treatment · 2011Trial
- Women's decisions regarding tamoxifen for breast cancer prevention: responses to a tailored decision aid.Breast cancer research and treatment · 2010Trial
- Perceptions of chemoprevention among individuals at high risk of oral cancer: qualitative study within the UK-based SAVER trial.BMJ open · 2025Article
- Making Informed Choices On Incorporating Chemoprevention into carE (MiCHOICE, SWOG 1904): Design and methods of a cluster randomized controlled trial.Contemporary clinical trials · 2024Article
- The Gail Model and Its Use in Preventive Screening: A Comparison of the Corbelli Study.Cureus · 2024Article
- Extraction of Electronic Health Record Data using Fast Healthcare Interoperability Resources for Automated Breast Cancer Risk Assessment.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2021Article
- African Americans Want a Focus on Shared Decision-Making in Asthma Adherence Interventions.The patient · 2020Article
- Study protocol: Randomized controlled trial of web-based decision support tools for high-risk women and healthcare providers to increase breast cancer chemoprevention.Contemporary clinical trials communications · 2019Article
- Integrating multiple community perspectives in intervention development.Health education research · 2019Article
- Pilot study of decision support tools on breast cancer chemoprevention for high-risk women and healthcare providers in the primary care setting.BMC medical informatics and decision making · 2018Article
- Uptake of breast cancer preventive therapy in the UK: results from a multicentre prospective survey and qualitative interviews.Breast cancer research and treatment · 2018Article
- 'No Pink Ribbons': How Women's Lived Experiences With Breast Atypia Inform Decisions Involving Risk-Reducing Medications.Journal of patient-centered research and reviews · 2018Article
- Deciding on breast cancer risk reduction: The role of counseling in individual decision-making - A qualitative study.Patient education and counseling · 2017Article
- Chemoprevention Uptake among Women with Atypical Hyperplasia and Lobular and Ductal CarcinomaCancer prevention research (Philadelphia, Pa.) · 2017Article
- Decision making for breast cancer prevention among women at elevated risk.Breast cancer research : BCR · 2017Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDespite advances in breast cancer risk assessment and risk reduction technologies, little is still known about how high-risk women make sense of their risk and assess prevention options, particularly among minority and low-income women. Qualitative methods explore the complex meanings and logics of risk and prevention that quantitative approaches overlook.
objectiveThis study examined how women attending a high risk breast cancer clinic at a public hospital conceptualize their breast cancer risk and think about the prevention options available to them.
methodsSemi-structured interviews were used to gather data from 33 high-risk women (75% African American) between May and August 2004. Interview transcripts were analyzed for recurrent themes and patterns.
resultsDespite general awareness of their objective risk status, many women in this study reported they did not feel "high risk" because they lacked signs and symptoms of cancer. Risk was described as an experienced acute problem rather than a statistical possibility. Women also frequently stated that thinking about cancer might cause it to happen and so it is better not to "dwell on it." While screening was welcomed, women were generally skeptical about primary prevention. In particular, preventive therapies were perceived to cause problems and were only acceptable as treatment options for a disease.
conclusionsThe body of ideas about risk and prevention expressed by this population differ from the medical model. These findings have implications for risk perception research as well as for the efficacy of risk communication and prevention counseling in clinical contexts.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.