ArticleCommunity genetics2006
How do women decide? Accepting or declining BRCA1/2 testing in a nationwide clinical sample in the United States.
Article in Community genetics, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed.
- Risk information exposure and direct-to-consumer genetic testing for BRCA mutations among women with a personal or family history of breast or ovarian cancer.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2009Trial
- Commentary: Why is genetic testing underutilized worldwide? The case for hereditary breast cancer.BJC reports · 2024Review
- Online Provision ofCancers · 2024Article
- Unselected Population Genetic Testing for Personalised Ovarian Cancer Risk Prediction: A Qualitative Study Using Semi-Structured Interviews.Diagnostics (Basel, Switzerland) · 2022Article
- Knowledge, Attitudes, Willingness to Pay, and Patient Preferences About Genetic Testing and Subsequent Risk Management for Cancer Prevention.Journal of cancer education : the official journal of the American Association for Cancer Education · 2022Article
- Investigating men's motivations to engage in genetic screening for BRCA1 and BRCA2 mutations.PloS one · 2022Article
- The persistent lack of knowledge and misunderstanding of the Genetic Information Nondiscrimination Act (GINA) more than a decade after passage.Genetics in medicine : official journal of the American College of Medical Genetics · 2021Article
- Current Testing Guidelines: A Retrospective Analysis of a Community-Based Hereditary Cancer Program.Journal of the advanced practitioner in oncology · 2021Article
- Young Women's Perceptions Regarding Communication with Healthcare Providers About Breast Cancer, Risk, and Prevention.Journal of women's health (2002) · 2018Article
- Known unknowns: building an ethics of uncertainty into genomic medicine.BMC medical genomics · 2016Article
- What Black Women Know and Want to Know About Counseling and Testing for BRCA1/2.Journal of cancer education : the official journal of the American Association for Cancer Education · 2015Article
- Exploring the views of parents regarding dietary habits of their young cancer-surviving children.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2015Article
- Attitudes of patients with cancer about personalized medicine and somatic genetic testing.Journal of oncology practice · 2012Article
- Recognizing BRCA gene mutation risk subsequent to breast cancer diagnosis in southwestern Ontario.Canadian family physician Medecin de famille canadien · 2012Article
- Motivators for participation in a whole-genome sequencing study: implications for translational genomics research.European journal of human genetics : EJHG · 2011Article
- Underutilization of BRCA1/2 testing to guide breast cancer treatment: black and Hispanic women particularly at risk.Genetics in medicine : official journal of the American College of Medical Genetics · 2011Article
- To know or not to know? Not the only question in familial breast cancer risk communication.Ecancermedicalscience · 2011Article
- What is in a cause? Exploring the relationship between genetic cause and felt stigma.Genetics in medicine : official journal of the American College of Medical Genetics · 2006Article
- Ethical Issues in Intraoperative Neuroscience Research: Assessing Subjects' Recall of Informed Consent and Motivations for Participation.AJOB empirical bioethicsArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
objectiveTo examine the role of the practitioner, informed consent, and genetic counseling in genetic testing decisions and to assess their relative influence on women's decision to have clinical BRCA1/2 testing.
methodsQualitative study using in-depth open-ended interviews with 68 women who had considered clinical BRCA1/2 testing.
resultsSlightly less than half of the women who had considered BRCA1/2 testing were found to have had a clear and preexisting desire to test or not to test, irrespective of practitioner attitude or advice.
conclusionThe decision to accept or decline genetic testing is the result of a complex process that goes beyond interactions between health care providers and patients, indicating a caution against exclusive reliance on informed consent or counseling encounters.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.