ArticleHealth and quality of life outcomes2006
Misinterpretation with norm-based scoring of health status in adults with type 1 diabetes.
Article in Health and quality of life outcomes, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- A meta-analysis of health state valuations for people with diabetes: explaining the variation across methods and implications for economic evaluation.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2011Pooled it
- Does Visual Speed of Processing Training Improve Health-Related Quality of Life in Assisted and Independent Living Communities?: A Randomized Controlled Trial.Innovation in aging · 2020Article
- Adverse events and patients' perceived health-related quality of life at the end of multidrug-resistant tuberculosis treatment in Namibia.Patient preference and adherence · 2016Article
- Health utilities for children and adults with type 1 diabetes.Medical care · 2011Article
- A review of health utilities across conditions common in paediatric and adult populations.Health and quality of life outcomes · 2010Review
- The predictive validity of health-related quality of life measures: mortality in a longitudinal population-based study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2007Article
- How can quality of life researchers make their work more useful to health workers and their patients?Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2007Review
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Authors and funding
4 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundInterpretations of profile and preference based measure scores can differ. Profile measures often use a norm-based scoring algorithm where each scale is scored to have a standardized mean and standard deviation, relative to the general population scores/norms (i.e., norm-based). Preference-based index measures generate an overall scores on the conventional scale in which 0.00 is assigned to dead and 1.00 is assigned to perfect health. Our objective was to investigate the interpretation of norm-based scoring of generic health status measures in a population of adults with type 1 diabetes by comparing norm-based health status scores and preference-based health-related quality of life (HRQL) scores.
methodsData were collected through self-complete questionnaires sent to patients with type 1 diabetes. The RAND-36 and the Health Utilities Index Mark 3 (HUI3) were included.
resultsA total of 216 (61%) questionnaires were returned. The respondent sample was predominantly female (58.8%); had a mean (SD) age of 37.1 (14.3) years and a mean duration of diabetes of 20.9 (12.4) years. Mean (SD) health status scores were: RAND-36 PHC 47.9 (9.4), RAND-36 MHC 47.2 (11.8), and HUI3 0.78 (0.23). Histograms of these scores show substantial left skew. HUI3 scores were similar to those previously reported for diabetes in the general Canadian population. Physical and mental health summary scores of the RAND-36 suggest that this population is as healthy as the general adult population.
conclusionIn this sample, a preference-based measure indicated poorer health, consistent with clinical evidence, whereas a norm-based measure indicated health similar to the average for the general population. Norm-based scoring measure may provide misleading interpretations in populations when health status is not normally distributed.
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