ArticleEthnicity & disease2005
Improving Hawaiian and Filipino involvement in clinical research opportunities: qualitative findings from Hawai'i.
Article in Ethnicity & disease, 2005. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A systematic literature review of Native American and Pacific Islanders' perspectives on health data privacy in the United States.Journal of the American Medical Informatics Association : JAMIA · 2020Pooled it
- A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.American journal of public health · 2014Pooled it
- Exploring meaning in culture: Insights from meaning-centered psychotherapy in Aotearoa, New Zealand.Palliative & supportive care · 2026Article
- Exploring Diabetes Clinical Trial Participation: A Diverse Group Interview Study.Therapeutic innovation & regulatory science · 2026Article
- Winning hearts & minds: prostate cancer outreach and clinical trial enrollment in minority men.Translational cancer research · 2024Review
- Article
- Enhancing Recruitment and Retention of Minority Populations for Clinical Research in Pulmonary, Critical Care, and Sleep Medicine: An Official American Thoracic Society Research Statement.American journal of respiratory and critical care medicine · 2021Article
- Factors associated with completion of patient surveys 1 year after bariatric surgery.Surgery for obesity and related diseases : official journal of the American Society for Bariatric Surgery · 2021Article
- Experience and lessons learned from multi-modal internet-based recruitment of U.S. Vietnamese into research.PloS one · 2021Article
- Recruiting Filipino Immigrants in a Randomized Controlled Trial Promoting Enrollment in an Evidence-Based Parenting Intervention.Journal of immigrant and minority health · 2019Article
- Lung Cancer Screening and Epigenetics in African Americans: The Role of the Socioecological Framework.Frontiers in oncology · 2019Article
- Impact of Race Versus Education and Race Versus Income on Patients' Motivation to Participate in Clinical Trials.Journal of racial and ethnic health disparities · 2018Article
- Prevention of Filipino Youth Behavioral Health Disparities: Identifying Barriers and Facilitators to Participating in "Incredible Years," an Evidence-Based Parenting Intervention, Los Angeles, California, 2012.Preventing chronic disease · 2015Article
- Using animation as an information tool to advance health research literacy among minority participants.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2013Article
- Challenges in identifying Native Hawaiians and Pacific Islanders in population-based cancer registries in the U.S.Journal of immigrant and minority health · 2011Article
- An ethno-medical perspective on research participation: a qualitative pilot study.MedGenMed : Medscape general medicine · 2006Article
- The Native Hawaiian and Pacific Islander National Health Interview Survey: Data Collection in Small Populations.Public health reports (Washington, D.C. : 1974)Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
Abstract
objectiveInvestigate the barriers to participation in medical research that involves Asian and Pacific Islander (API) populations in Hawai'i.
participantsFifty people (27 Filipinos, 23 Hawaiian/Pacific Islanders) in five different communities on Oahu.
designNine focus groups with an ethnically matched moderator were held to explore people's feelings, problems, and recommendations regarding medical research. Sessions were audiotaped, transcribed, and qualitatively analyzed with the constant comparison method.
resultsOnly 12% of study participants said that they absolutely would not participate in a clinical study. Most agreed that research is vital. Filipino participants were more optimistic about the safety and value of joining in medical research. Hawaiian groups were more hesitant and fearful. Reasons for nonparticipation included negative feelings about the purpose and intent of clinical trials and language and cultural barriers. Suggestions on how to encourage API populations to participate in research investigations included improving peoples' understanding of the benefits to family and community. Hawaiian and Filipino groups differed only slightly in their assessments of the type of research needed in their communities.
conclusionsRecruitment campaigns must improve people's awareness of the process of informed consent, research safeguards, and benefits to family and community. Attention should focus on K-12 health education to use members of the younger generations to access and educate elders, involving persons with medical research experience as a recruitment resource, returning results to study participants, and increasing the number of healthcare professionals and researchers that are culturally and linguistically matched to the community.
Indexed as
Identifiers
16312944PMC1473039What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.