Evidence map›Paper›PMID 16307632›Full record

ArticleJournal of general internal medicine2005

Health services research in the privacy age.

Rachel Hess, Karen Matthews, Melissa McNeil, ChungChou H Chang, Wishwa Kapoor, Cindy Bryce

Open access · greenAbstract read
In one paragraph

Article in Journal of general internal medicine, 2005. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
2.3field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 12 citations in OpenAlex.

  1. Trial
  2. Trial
  3. Patterns of response to patient-centered decision support through a personal health record.Telemedicine journal and e-health : the official journal of the American Telemedicine Association · 2014
    Article
  4. Article
  5. Review
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 1 institution in 1 country.

Rachel HessDivision of General Internal Medicine, Center for Research on Health Care, University of Pittsburgh School of Medicine, Pittsburgh, PA 15213, USA. hessr@upmc.edu
Karen Matthews
Melissa McNeil
ChungChou H Chang
Wishwa Kapoor
Cindy Bryce
University of Pittsburgh · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundStrengthened regulations concerning privacy of health information are affecting large-scale health outcomes research.

objectiveTo create a data collection system that would facilitate outcomes research, avoid selection bias, and fulfill obligations to protect privacy.

designWe created a web-based system that uses touch-screen computer technology for longitudinal collection of data. The system provides access to information in deidentified form, enables it to be linked to health services and outcomes data, and allows patients to join a research registry project (RRP) and be placed on a prospective subject list (PSL). PARTICIPANTS, MEASUREMENTS, AND

resultsPilot testing in 86 consecutive patients who were seen at a large, urban, university-based general medicine practice and had a mean age of 50 years showed that 81 patients had no difficulty, 5 had some difficulty, and none had considerable difficulty using the computer technology to complete a health survey. No patients refused to complete the survey and all patients completed the entire survey. Forty-seven (55%) joined the RRP and 42 of these 47 (89%) joined the PSL. RRP participants were less likely than RRP nonparticipants to be divorced or widowed (P=.03) and less likely to have hypertension (P=.03) but had no other significant differences in sociodemographic or clinical characteristics. PSL participants did not differ from PSL nonparticipants.

conclusionsThe new system ensures privacy and appears to facilitate research recruitment and avoid selection bias.

Indexed as

ConfidentialityMedical Informatics ApplicationsRegistriesAdultAgedAged, 80 and overComputersData CollectionFemaleHealth Insurance Portability and Accountability ActHealth Services ResearchHumansInternetMaleMiddle AgedOutcome Assessment, Health Care

Identifiers

PMID16307632
PMCPMC1490264
OpenAlexW1910265560

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.