ArticleJournal of the American Medical Informatics Association : JAMIA
Exploring and developing consumer health vocabularies.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 88 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
88 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Applying natural language processing and machine learning techniques to patient experience feedback: a systematic review.BMJ health & care informatics · 2021Pooled it
- README: Bridging Medical Jargon and Lay Understanding for Patient Education through Data-Centric NLP.Findings of ACL. EMNLP. Conference on Empirical Methods in Natural Language Processing · 2024Article
- Evaluating Expert-Layperson Agreement in Identifying Jargon Terms in Electronic Health Record Notes: Observational Study.Journal of medical Internet research · 2024Observational
- Three dimensions of COVID-19 risk perceptions and their socioeconomic correlates in the United States: A social media analysis.Risk analysis : an official publication of the Society for Risk Analysis · 2023Article
- Painful Diabetic Peripheral Neuropathy - A Survey of Patient Experiences.Journal of pain research · 2023Article
- MedJEx: A Medical Jargon Extraction Model with Wiki's Hyperlink Span and Contextualized Masked Language Model Score.Proceedings of the Conference on Empirical Methods in Natural Language Processing. Conference on Empirical Methods in Natural Language Processing · 2022Article
- A survey of automated methods for biomedical text simplification.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Search Term Identification Methods for Computational Health Communication: Word Embedding and Network Approach for Health Content on YouTube.JMIR medical informatics · 2022Article
- Identifying Health-Related Discussions of Cannabis Use on Twitter by Using a Medical Dictionary: Content Analysis of Tweets.JMIR formative research · 2022Article
- Monitoring Health Effects of Vaping Discussed on Twitter in 2018 and 2019.Journal of general internal medicine · 2022Article
- Social Media Analytics for Pharmacovigilance of Antiepileptic Drugs.Computational and mathematical methods in medicine · 2022Article
- User-Centered System Design for Communicating Clinical Laboratory Test Results: Design and Evaluation Study.JMIR human factors · 2021Article
- Seeking Mental Health Support Among College Students in Video-Based Social Media: Content and Statistical Analysis of YouTube Videos.JMIR formative research · 2021Article
- Identifying False Human Papillomavirus (HPV) Vaccine Information and Corresponding Risk Perceptions From Twitter: Advanced Predictive Models.Journal of medical Internet research · 2021Article
- LexExp: a system for automatically expanding concept lexicons for noisy biomedical texts.Bioinformatics (Oxford, England) · 2021Article
- Development of a plain-language guide for discussing breast cancer genetic counseling and testing with patients with limited health literacy.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Towards more patient friendly clinical notes through language models and ontologies.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2021Article
- An automated method to enrich consumer health vocabularies using GloVe word embeddings and an auxiliary lexical resource.PeerJ. Computer science · 2021Article
- An Exploration of Knowledge and Themes on Diabetes during Outpatient Consultation in a Tertiary Referral Hospital.Journal of the ASEAN Federation of Endocrine Societies · 2021Article
- Combining Social Media and FDA Adverse Event Reporting System to Detect Adverse Drug Reactions.Drug safety · 2020Article
28 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
Laypersons ("consumers") often have difficulty finding, understanding, and acting on health information due to gaps in their domain knowledge. Ideally, consumer health vocabularies (CHVs) would reflect the different ways consumers express and think about health topics, helping to bridge this vocabulary gap. However, despite the recent research on mismatches between consumer and professional language (e.g., lexical, semantic, and explanatory), there have been few systematic efforts to develop and evaluate CHVs. This paper presents the point of view that CHV development is practical and necessary for extending research on informatics-based tools to facilitate consumer health information seeking, retrieval, and understanding. In support of the view, we briefly describe a distributed, bottom-up approach for (1) exploring the relationship between common consumer health expressions and professional concepts and (2) developing an open-access, preliminary (draft) "first-generation" CHV. While recognizing the limitations of the approach (e.g., not addressing psychosocial and cultural factors), we suggest that such exploratory research and development will yield insights into the nature of consumer health expressions and assist developers in creating tools and applications to support consumer health information seeking.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.