ArticleInternational journal of colorectal disease2006
Knowledge of disease and health information needs of the patients with inflammatory bowel disease in a developing country.
Article in International journal of colorectal disease, 2006. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed, 32 citations in OpenAlex.
- Awareness of inflammatory bowel disease-associated colorectal cancer risk and its management in patients with inflammatory bowel disease: a systematic review.Crohn's & colitis 360 · 2026Article
- Article
- The development of a novel, multilingual IBD knowledge questionnaire for Asian patients with inflammatory bowel disease.BMC gastroenterology · 2023Article
- Expert opinions on informational and supportive needs and sources of obtaining information in patients with inflammatory bowel disease: a Delphi consensus study.Frontiers in psychology · 2023Article
- Identification of the informational and supportive needs of patients diagnosed with inflammatory bowel disease: a scoping review.Frontiers in psychology · 2023Article
- A Short Knowledge Assessment Tool Is Valid and Acceptable for Adults with Inflammatory Bowel Disease.Digestive diseases and sciences · 2022Article
- Development, validation, and application of a novel tool to measure disease-related knowledge in patients with inflammatory bowel disease.The Korean journal of internal medicine · 2019Article
- Article
- Psychological status in Iranian patients with ulcerative colitis and its relation to disease activity and quality of life.Journal of research in medical sciences : the official journal of Isfahan University of Medical Sciences · 2015Article
- Assessment of disease specific knowledge and health-related quality of life among United States military veterans with inflammatory bowel disease.World journal of gastroenterology · 2015Article
- Dr Google and the consumer: a qualitative study exploring the navigational needs and online health information-seeking behaviors of consumers with chronic health conditions.Journal of medical Internet research · 2014Article
- Disease-Related Knowledge and Information Needs Among Inflammatory Bowel Disease Patients in Korea.Gastroenterology nursing : the official journal of the Society of Gastroenterology Nurses and AssociatesArticle
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Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
aimsThis study was performed to have a first-time assessment on the knowledge level of a population of inflammatory bowel disease (IBD) patients in a developing country like Iran and to identify their health information preferences.
methodsOne hundred over 18-year-old IBD patients presenting to an outpatient gastroenterology clinic in Tehran from April to November 2004 were asked to complete Persian-translated version of 24-item Crohn's and Colitis Knowledge (CCKNOW) score questionnaire and an additional questionnaire collecting their favorite disease-related knowledge topics.
resultsAll of the patients (64 females, 36 males) wished to know more about their disease. The cause of IBD and the medications were the most favorite knowledge topics. The mean and median of CCKNOW score of the patients was 4.65 and 4.0 (out of 24), respectively. Women showed significantly higher scores than men (p=0.006). There was also a weak positive correlation between the level of education and CCKNOW score (Spearman's rho=0.23, p=0.02). No significant correlation was found between age, duration of disease, self-estimated level of suffering from disease, and CCKNOW score. The most severe knowledge deficit was evident in knowledge on IBD complications.
conclusionDespite the overt inclination of Iranian IBD patients to know more about their disease, their knowledge levels were significantly lower than the IBD patients in developed countries. The more profound knowledge deficit in IBD complications may lead to disastrous aftermaths such as late diagnosis of colorectal cancer induced by prolonged IBD. Vigorous patient education programs for the Iranian IBD patient are suggested focusing on areas of knowledge deficit and their favorite topics.
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