SynthesisBMC pediatrics2005
Parents' psychological adjustment in families of children with spina bifida: a meta-analysis.
Synthesis in BMC pediatrics, 2005. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 32 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
32 citing papers in PubMed, 1 synthesis or guideline pooled it, 99 citations in OpenAlex.
- Maternal adaptation of working mothers with infants or toddlers in South Korea: a systematic review.BMC women's health · 2021Pooled it
- Impact on family and parental stress of prenatal vs postnatal repair of myelomeningocele.American journal of obstetrics and gynecology · 2016Trial
- Social development of girls with a physical disability during adolescence: Parent perspectives.Rehabilitation psychology · 2026Article
- Article
- Cost analysis of outpatient services for major external structural birth defects: an ingredient approach in selected hospitals in Kiambu County, Kenya.The Pan African medical journal · 2024Article
- The Perceived Influence of Neurofibromatosis Type 1(NF1) on the Parents' Relationship.Children (Basel, Switzerland) · 2023Article
- Caregiver Expressed Emotion in Families of Youth With Spina Bifida: Demographic, Medical, and Family Correlates.Journal of pediatric psychology · 2023Article
- Trajectories of Marital Satisfaction among Parents of Youth with Spina Bifida.Journal of pediatric psychology · 2022Article
- Child, Parent, and Family Adjustment for Patients Followed in a Multidisciplinary Spina Bifida Clinic.Topics in spinal cord injury rehabilitation · 2022Article
- Article
- Scope of care in the first four years of life for individuals born with myelomeningocele: A single institution experience1.Journal of pediatric rehabilitation medicine · 2021Article
- Fetal surgery for open spina bifida.The obstetrician & gynaecologist : the journal for continuing professional development from the Royal College of Obstetricians & Gynaecologists · 2019Review
- Development of the Parent Forum: An in-person approach to supporting caregivers of youth with spinal cord injury.The journal of spinal cord medicine · 2019Article
- Parental Distress and Stress in Association with Health-Related Quality of Life in Youth with Spina Bifida: A Longitudinal Study.Journal of developmental and behavioral pediatrics : JDBP · 2018Article
- Parental Perceptions of Child Vulnerability in Families of Youth With Spina Bifida: the Role of Parental Distress and Parenting Stress.Journal of pediatric psychology · 2018Article
- Socioeconomic Status and Parental Perceived Social Support in Relation to Health-Related Quality of Life in Youth with Spina Bifida.The undergraduate research journal of psychology at UCLA · 2018Article
- Family adaptation to cerebral palsy in adolescents: A European multicenter study.Research in developmental disabilities · 2017Article
- Long-time sickness absence among parents of pre-school children with cerebral palsy, spina bifida and down syndrome: a longitudinal study.BMC pediatrics · 2017Article
- Rewards of parenting children and adolescents with spinal cord injuries.Spinal cord · 2017Article
- Parental stress and support of parents of children with spina bifida in Uganda.African journal of disability · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundSpina Bifida (SB) is the second most common birth defect worldwide. Since the chances of survival in children with severe SB-forms have increased, medical care has shifted its emphasis from life-saving interventions to fostering the quality of life for these children and their families. Little is known, however, about the impact of SB on family adjustment. Reviewers have struggled to synthesize the few contradictory studies available. In this systematic review a new attempt was made to summarize the findings by using meta-analysis and by delimiting the scope of review to one concept of family adjustment: Parents' psychological adjustment. The questions addressed were: (a) do parents of children with SB have more psychological distress than controls? (b) do mothers and fathers differ? and (c) which factors correlate with variations in psychological adjustment?
methodsPsycInfo, Medline, and reference lists were scanned. Thirty-three relevant studies were identified of which 15 were eligible for meta-analysis.
resultsSB had a negative medium-large effect on parents' psychological adjustment. The effect was more heterogeneous for mothers than for fathers. In the reviewed studies child factors (age, conduct problems, emotional problems, and mental retardation), parent factors (SES, hope, appraised stress, coping, and parenting competence), family factors (family income, partner relationship, and family climate), and environmental factors (social support) were found to be associated with variations in parents' psychological adjustment.
conclusionMeta-analysis proved to be helpful in organizing studies. Clinical implications indicate a need to be especially alert to psychological suffering in mothers of children with SB. Future research should increase sample sizes through multi-center collaborations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.