ArticleHealth expectations : an international journal of public participation in health care and health policy2005
From rhetoric to reality: including patient voices in supportive cancer care planning.
Article in Health expectations : an international journal of public participation in health care and health policy, 2005. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it, 28 citations in OpenAlex.
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- "Part of the Team": Mapping the outcomes of training patients for new roles in health research and planning.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Patient engagement in the process of planning and designing outpatient care improvements at the Veterans Administration Health-care System: findings from an online expert panel.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- Engaging older adults in healthcare research and planning: a realist synthesis.Research involvement and engagement · 2016Review
- Does implementing a development plan for user participation in a mental hospital change patients' experience? A non-randomized controlled study.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- Aiming for inclusion: a case study of motivations for involvement in mental health-care governance by ethnic minority users.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- From awareness to involvement? A qualitative study of respiratory patients' awareness of health service change.Health expectations : an international journal of public participation in health care and health policy · 2011Article
- Service user involvement in cancer care: the impact on service users.Health expectations : an international journal of public participation in health care and health policy · 2011Article
- Are elected health boards an effective mechanism for public participation in health service governance?Health expectations : an international journal of public participation in health care and health policy · 2010Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo explore the extent and manner of patient participation in the planning of regional supportive care networks throughout the province of Ontario. We consider the disconnect between the rhetoric and reality of patient involvement in network planning and co-ordination. CONTEXT: In 1997, the Province of Ontario, Canada, established a new, regionalized cancer care system. By transferring responsibility to the regional level and to networks, the architects of the new provincial system hoped to broaden participation in decision making and to enhance the responsiveness of decisions to communities. RESEARCH APPROACH: Through a qualitative, multiple case study approach we evaluated the processes of involving patients in network development. In-depth, semi-structured interviews and document analysis were complemented by observations of provincial meetings, regional council and network meetings.
resultsThe network development processes in the three case study regions reveal a significant gap between intentions to involve patients in health planning and their actual involvement. This gap can be explained by: (i) a lack of clear direction regarding networks and patient participation in these networks; (ii) the dominance of regional cancer centres in network planning activities; and, (iii) the emergence of competing provincial priorities. DISCUSSION: These three trends expose the complexity of the notion of public participation and how it is embedded in social and political contexts. The failed attempt at involving patients in health planning efforts is the result of benign neglect of public participation intents and the social and political contexts in which public and patient participation is meant to occur.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.