ArticleBMC medical informatics and decision making2005
Evidence-based patient choice: a prostate cancer decision aid in plain language.
Article in BMC medical informatics and decision making, 2005. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 51 papers, 4 of them syntheses that pooled it.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
51 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Interventions that Facilitate Shared Decision-Making in Cancers with Active Surveillance as Treatment Option: a Systematic Review of Literature.Current oncology reports · 2020Pooled it
- How best to use and evaluate Patient Information Leaflets given during a consultation: a systematic review of literature reviews.Health expectations : an international journal of public participation in health care and health policy · 2017Pooled it
- A systematic review of information in decision aids.Health expectations : an international journal of public participation in health care and health policy · 2007Pooled it
- Experiences of Using Patient Decision Aids for Decisions About Cancer Treatment: A Meta-Aggregation of Qualitative Studies.Cancer nursingPooled it
- Preparing Patients with Early Stage Prostate Cancer to Participate in Clinical Appointments Using a Shared Decision Making Training Video.Medical decision making : an international journal of the Society for Medical Decision Making · 2022Trial
- Trial
- Effectiveness of Decision Aid in Men with Localized Prostate Cancer: a Multicenter Randomized Controlled Trial at Tertiary Referral Hospitals in an Asia Pacific Country.Journal of cancer education : the official journal of the American Association for Cancer Education · 2022Trial
- Head to head randomized trial of two decision aids for prostate cancer.BMC medical informatics and decision making · 2021Trial
- Does Patient Preference Measurement in Decision Aids Improve Decisional Conflict? A Randomized Trial in Men with Prostate Cancer.The patient · 2017Trial
- Linguistic Strategies for Improving Informed Consent in Clinical Trials Among Low Health Literacy Patients.Journal of the National Cancer Institute · 2017Trial
- The Personal Patient Profile-Prostate decision support for men with localized prostate cancer: a multi-center randomized trial.Urologic oncology · 2013Trial
- Randomized controlled trial of a video decision support tool for cardiopulmonary resuscitation decision making in advanced cancer.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2013Trial
- Entertainment education for prostate cancer screening: a randomized trial among primary care patients with low health literacy.Patient education and counseling · 2008Trial
- The effect of improved readability scores on consumers' perceptions of the quality of health information on the internet.Journal of cancer education : the official journal of the American Association for Cancer Education · 2007Trial
- Real-world implementation of a pre-consultation patient educational tool for intermediate risk prostate cancer.Clinical and translational radiation oncology · 2026Article
- The Role of Emotions in Health Literacy and Patient Education: Trends, Technologies, and Future Opportunities-A Scoping Review.Healthcare (Basel, Switzerland) · 2026Review
- Evaluation of prostate cancer pathology reports generated by ChatGPT to enhance patient comprehension.Scientific reports · 2025Article
- APPLS: Evaluating Evaluation Metrics for Plain Language Summarization.Proceedings of the Conference on Empirical Methods in Natural Language Processing. Conference on Empirical Methods in Natural Language Processing · 2024Article
- A randomized implementation trial to increase adoption of evidence-informed consent practices.Journal of clinical and translational science · 2023Article
- Barriers to Using Legally Authorized Representatives in Clinical Research with Older Adults.Journal of Alzheimer's disease reports · 2023Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDecision aids (DA) to assist patients in evaluating treatment options and sharing in decision making have proliferated in recent years. Most require high literacy and do not use plain language principles. We describe one of the first attempts to design a decision aid using principles from reading research and document design. The plain language DA prototype addressed treatment decisions for localized prostate cancer. Evaluation assessed impact on knowledge, decisions, and discussions with doctors in men newly diagnosed with prostate cancer.
methodsDocument development steps included preparing an evidence-based DA in standard medical parlance, iteratively translating it to emphasize shared decision making and plain language in three formats (booklet, Internet, and audio-tape). Scientific review of medical content was integrated with expert health literacy review of document structure and design. Formative evaluation methods included focus groups (n = 4) and survey of a new sample of men newly diagnosed with prostate cancer (n = 60), compared with historical controls (n = 184).
resultsA transparent description of the development process and design elements is reported. Formative evaluation among newly diagnosed prostate cancer patients found the DA to be clear and useful in reaching a decision. Newly diagnosed patients reported more discussions with doctors about treatment options, and showed increases in knowledge of side effects of radiation therapy.
conclusionThe plain language DA presenting medical evidence in text and numerical formats appears acceptable and useful in decision-making about localized prostate cancer treatment. Further testing should evaluate the impact of all three media on decisions made and quality of life in the survivorship period, especially among very low literacy men.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.