ArticleJournal of genetic counseling2005
Experiences of prenatal diagnosis of spina bifida or hydrocephalus in parents who decide to continue with their pregnancy.
Article in Journal of genetic counseling, 2005. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 62 citations in OpenAlex.
- Communicating neurological prognosis in the prenatal period: a narrative review and practice guidelines.Pediatric research · 2025Guideline
- The Path Is Made by Walking-Mapping the Healthcare Pathways of Parents Continuing Pregnancy after a Severe Life-Limiting Fetal Diagnosis: A Qualitative Interview Study.Children (Basel, Switzerland) · 2022Article
- Understanding the Care Journey and Needs of Advanced Fetal Care Center Patients.The Permanente journal · 2022Article
- The Voice of Parents of Children With a Congenital Anomaly - A EUROlinkCAT Study.Frontiers in pediatrics · 2021Article
- Consulting with a folk deity before making decisions: spiritual practices in parents facing end-of-life decisions for their child on life support with brain stem dysfunction.International journal of qualitative studies on health and well-being · 2020Article
- Article
- Health-care provider communication with expectant parents during a prenatal diagnosis: an integrative review.Journal of perinatology : official journal of the California Perinatal Association · 2017Review
- A routine tool with far-reaching influence: Australian midwives' views on the use of ultrasound during pregnancy.BMC pregnancy and childbirth · 2015Article
- Parental decision-making for medically complex infants and children: an integrated literature review.International journal of nursing studies · 2014Review
- A review of the social, psychological, and economic burdens experienced by people with spina bifida and their caregivers.Neurology and therapy · 2013Review
- The impact of spina bifida on caregivers.Neurology and therapy · 2012Review
- Imagined futures: how experiential knowledge of disability affects parents' decision making about fetal abnormality.Health expectations : an international journal of public participation in health care and health policy · 2012Article
- Genetic testing likelihood: the impact of abortion views and quality of life information on women's decisions.Journal of genetic counseling · 2011Article
- Exploring adoption with clients: the need for adoption education within the genetic counseling profession.Journal of genetic counseling · 2010Article
- The health-care experiences of families given the prenatal diagnosis of trisomy 18.Journal of perinatology : official journal of the California Perinatal Association · 2008Article
- Prenatal counseling: Guidelines for the care of people with spina bifida.Journal of pediatric rehabilitation medicineReview
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The current study aimed to gain an understanding of the perspectives of those parents provided with a prenatal diagnosis of spina bifida or hydrocephalus and who decided to continue with their pregnancy. Qualitative interviews were conducted with 15 parents who learned of their unborn child's spina bifida and/or hydrocephalus in the prenatal period. The interviewer asked parents about their experiences of receiving a prenatal diagnosis and their experience of coping throughout the remainder of the antenatal period. Parents' reactions and experiences fell into five domains: response to diagnosis, experience of medical systems, information gathering, decision-making regarding continuation of the pregnancy following diagnosis and responses of significant others. Each of these domains is explicated. The findings derived from the current study have implications for professionals who provide support to parents during the prenatal period. Future research needs to further explore the common and unique issues for parents living in both urban and rural areas.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.