ArticleJournal of genetic counseling2005
A practical account of autonomy: why genetic counseling is especially well suited to the facilitation of informed autonomous decision making.
Article in Journal of genetic counseling, 2005. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT00360711 (Genetic Counselors' Experiences of Moral Value Conflicts With Clients), which is not on this map. Cited by 28 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Genetic Counselors' Experiences of Moral Value Conflicts With Clients
Who cites it
28 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Healthcare professionals' perspectives on and experiences with non-invasive prenatal testing: a systematic review.Human genetics · 2025Pooled it
- Counseling for improving adherence to antiretroviral treatment: a systematic review.AIDS care · 2019Pooled it
- Practice guidelines for communicating a prenatal or postnatal diagnosis of Down syndrome: recommendations of the national society of genetic counselors.Journal of genetic counseling · 2011Guideline
- The evolution of hereditary cancer genetic counselling: mainstreaming, service redesign and patient experience in Lynch syndrome.Familial cancer · 2026Review
- Cross Sectional Study of Prenatal Diagnosis Uptake Among Individuals With Genetic Conditions.Prenatal diagnosis · 2026Article
- Personal values, professional responsibilities and non-invasive prenatal testing: reflections of genetic counsellors in Australia.Journal of community genetics · 2026Article
- Navigating uncertainty during non-invasive prenatal testing: Genetic counselors' experiences of supporting autonomous reproductive decision-making.Journal of genetic counseling · 2026Article
- Experiences of perinatal genetic screening for people from migrant and refugee backgrounds: a scoping review.European journal of human genetics : EJHG · 2025Article
- Genetic Counseling Facilitates Family Communication of Genetic Risks.Acta medica Philippina · 2025Article
- Article
- Moving from 'fully' to 'appropriately' informed consent in genomics: The PROMICE framework.Bioethics · 2022Article
- An ethical framework for genetic counseling in the genomic era.Journal of genetic counseling · 2020Article
- Women's preferences for and experiences with prenatal genetic testing decision making: Sociodemographic disparities in preference-concordant decision making.Patient education and counseling · 2019Article
- A Report on Ten Asia Pacific Countries on Current Status and Future Directions of the Genetic Counseling Profession: The Establishment of the Professional Society of Genetic Counselors in Asia.Journal of genetic counseling · 2018Article
- Preferences for prenatal diagnosis of sickle-cell disorder: A discrete choice experiment comparing potential service users and health-care providers.Health expectations : an international journal of public participation in health care and health policy · 2017Article
- A Relational Approach to Genetic Counseling for Hereditary Breast and Ovarian Cancer.Journal of genetic counseling · 2017Article
- Preferences for prenatal tests for Down syndrome: an international comparison of the views of pregnant women and health professionals.European journal of human genetics : EJHG · 2016Article
- 'And then you can decide'--antenatal foetal diagnosis decision making in South Africa.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- Genetic Counseling for Indigenous Australians: an Exploratory Study from the Perspective of Genetic Health Professionals.Journal of genetic counseling · 2015Article
- Respecting autonomous decision making among Filipinos: a re-emphasis in genetic counseling.Journal of genetic counseling · 2015Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
In genetic counseling, facilitation of autonomous decision-making is seen as a primary aim and respect for autonomy is used to justify a nondirective counseling approach whereby clients are free to make their own choices after being given all necessary information. However in the genetic counseling literature, autonomy as a concept appears to be interpreted variably and often narrowly. We offer a practical account of autonomy that is coherent, consistent and philosophically defensible for the genetic counseling setting. At the same time we demonstrate how nondirective counseling may serve to frustrate rather than facilitate client autonomy. We suggest that promoting purposeful dialogue rather than counseling that is nondirective is more conducive to client autonomy.
Indexed as
Identifiers
15959640What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.