ArticleJournal of the American Medical Informatics Association : JAMIA
Patient-perceived usefulness of online electronic medical records: employing grounded theory in the development of information and communication technologies for use by patients living with chronic illness.
Article in Journal of the American Medical Informatics Association : JAMIA. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 60 papers, 3 of them syntheses that pooled it.
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Who cites it
60 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Understanding factors affecting patient and public engagement and recruitment to digital health interventions: a systematic review of qualitative studies.BMC medical informatics and decision making · 2016Pooled it
- A knowledge-based taxonomy of critical factors for adopting electronic health record systems by physicians: a systematic literature review.BMC medical informatics and decision making · 2010Pooled it
- A systematic review of patient acceptance of consumer health information technology.Journal of the American Medical Informatics Association : JAMIAPooled it
- Studying the Digital Intervention Engagement-Mediated Relationship Between Intrapersonal Measures and Pre-Exposure Prophylaxis Adherence in Sexual and Gender Minority Youth: Secondary Analysis of a Randomized Controlled Trial.Journal of medical Internet research · 2025Trial
- Using Health Information Technology to Foster Engagement: Patients' Experiences with an Active Patient Health Record.Health communication · 2017Trial
- The Impact of Perceived Usefulness of Wearable Devices on Treatment Adherence in Fracture Patients: The Chain Mediating Roles of Self-Efficacy and Meaning in Life.Patient preference and adherence · 2026Article
- Engaging veterans in the development of mobile health interventions to support medication treatment for opioid use disorder.Frontiers in digital health · 2026Article
- Evaluating Expert-Layperson Agreement in Identifying Jargon Terms in Electronic Health Record Notes: Observational Study.Journal of medical Internet research · 2024Observational
- Digital intervention for public health: searching for implementing characteristics, concepts and recommendations: scoping review.Frontiers in public health · 2023Article
- Article
- Guidance for publishing qualitative research in informatics.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Sociotechnical Drivers and Barriers in the Consumer Adoption of Personal Health Records: Empirical Investigation.JMIR medical informatics · 2021Article
- Utility, Value, and Benefits of Contemporary Personal Health Records: Integrative Review and Conceptual Synthesis.Journal of medical Internet research · 2021Review
- A qualitative exploration of patients' experiences, needs and expectations regarding online access to their primary care record.BMJ open · 2021Article
- A scoping review of qualitative research in JAMIA: past contributions and opportunities for future work.Journal of the American Medical Informatics Association : JAMIA · 2021Article
- Smartphone Use and Willingness to Pay for HIV Treatment-Assisted Smartphone Applications among HIV-Positive Patients in Urban Clinics of Vietnam.International journal of environmental research and public health · 2021Article
- A Comparative Analysis of Online Medical Record Utilization and Perception by Cancer Survivorship.Medical care · 2020Article
- Patient Use and Experience With Online Access to Electronic Health Records in Norway: Results From an Online Survey.Journal of medical Internet research · 2020Article
- Patients' Perceptions of Portal Use Across Care Settings: Qualitative Study.Journal of medical Internet research · 2019Article
- Impacts of a web-based educational program for veterans who read their mental health notes online.Journal of the American Medical Informatics Association : JAMIA · 2019Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivePatient use of online electronic medical records (EMR) holds the potential to improve health outcomes. The purpose of this study is to discover how patients living with chronic inflammatory bowel disease (IBD) value Internet-based patient access to electronic patient records.
designThis was a qualitative, exploratory, descriptive study using in-depth interviews and focus groups of a total of 12 patients with IBD of at least one-year duration at University Health Network, a tertiary care center in Toronto, Ontario.
resultsFour themes have been elucidated that comprise a theoretical framework of patient-perceived information and communication technology usefulness: promotion of a sense of illness ownership, of patient-driven communication, of personalized support, and of mutual trust.
conclusionsFor patients with chronic IBD, simply providing access to electronic medical records has little usefulness on its own. Useful technology for patients with IBD is multifaceted, self-care promoting, and integrated into the patient's already existing health and psychosocial support infrastructure. The four identified themes can serve as focal points for the evaluation of information technology designed for patient use, thus providing a patient-centered framework for developers seeking to adapt existing EMR systems to patient access and use for the purposes of improving health care quality and health outcomes. Further studies in other populations are needed to enhance generalizability of the emergent theory.
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