ArticleThe British journal of ophthalmology2005
Health services experiences of parents of recently diagnosed visually impaired children.
Article in The British journal of ophthalmology, 2005. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
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Who cites it
5 citing papers in PubMed.
- An exploratory study on support for caregivers of people with vision impairment in the UK.Ophthalmic & physiological optics : the journal of the British College of Ophthalmic Opticians (Optometrists) · 2022Article
- Uncertainty and self-efficacy in parents of a child with congenital cataract-New implications for clinical practice.Nursing open · 2019Article
- Predicting participation of people with impaired vision in epidemiological studies.BMC ophthalmology · 2018Article
- Article
- Multidisciplinary assessment of vision in children with neurological disability.The Ulster medical journal · 2011Article
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Authors and funding
4 authors.
Funding
Abstract
aimTo investigate the health service experiences and needs of parents in the period around diagnosis of ophthalmic disorders in their children.
methodsParents of children newly diagnosed with visual impairment and/or ophthalmic disorders at a tertiary level hospital in London participated in a questionnaire survey, using standard instruments, followed by in-depth individual interviews, to elicit their views about the processes of care, their overall level of satisfaction, and their unmet needs.
results67% (147) of eligible families (135 mothers, 76 fathers) participated. Overall satisfaction with care was high, being greater among parents of children with milder visual loss or isolated ophthalmic disorders than those with more severe visual loss or multiple impairments. Nevertheless, parents' reported greatest need was the provision of general information, including about their child's ophthalmic disorder and educational and social services and support. Mothers reported greater information needs than fathers, as did white parents compared to those from ethnic minorities. White parents also regarded the processes of care to be less comprehensive and coordinated, as well as less enabling, than did parents from ethnic minorities.
conclusionsAlthough parents reported high overall satisfaction with services, improving the medium, content, and scope of general information provided by professionals to parents of visually impaired children emerges as a priority. Equitable planning and provision of health services for families of children with visual impairment needs to take into account that informational and other needs vary by whether the parent is the primary carer or not and their ethnicity, as well as by the severity and complexity of their child's visual loss.
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