ArticleJournal of genetic counseling2004
Analyzing the process and content of genetic counseling in familial breast cancer consultations.
Article in Journal of genetic counseling, 2004. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
34 citing papers in PubMed.
- Effects of a pre-visit educational website on information recall and needs fulfilment in breast cancer genetic counselling, a randomized controlled trial.Breast cancer research : BCR · 2012Trial
- A pre-visit tailored website enhances counselees' realistic expectations and knowledge and fulfils information needs for breast cancer genetic counselling.Familial cancer · 2012Trial
- The role of numeracy on client knowledge in BRCA genetic counseling.Patient education and counseling · 2010Trial
- Design of the BRISC study: a multicentre controlled clinical trial to optimize the communication of breast cancer risks in genetic counselling.BMC cancer · 2008Trial
- The Genetic Counseling Video Project (GCVP): models of practice.American journal of medical genetics. Part C, Seminars in medical genetics · 2006Trial
- Assessment of psychosocial difficulties by genetic clinicians and distress in women at high risk of breast cancer: a prospective study.European journal of human genetics : EJHG · 2022Observational
- Understanding the Information Needs of Patients With Ovarian Cancer Regarding Genetic Testing to Inform Intervention Design: Interview Study.JMIR cancer · 2022Article
- GeneLiFT: A novel test to facilitate rapid screening of genetic literacy in a diverse population undergoing genetic testing.Journal of genetic counseling · 2021Article
- Using patient perspectives to inform communication training materials for health care professionals discussing BRCA mutation testing.Breast cancer research and treatment · 2020Article
- Communication about genetic testing with breast and ovarian cancer patients: a scoping review.European journal of human genetics : EJHG · 2019Article
- Exome sequencing disclosures in pediatric cancer care: Patterns of communication among oncologists, genetic counselors, and parents.Patient education and counseling · 2019Article
- The knowledge value-chain of genetic counseling for breast cancer: an empirical assessment of prediction and communication processes.Familial cancer · 2016Article
- Genetic counselor perceptions of genetic counseling session goals: a validation study of the reciprocal-engagement model.Journal of genetic counseling · 2015Article
- Genetic counselors' implicit racial attitudes and their relationship to communication.Health psychology : official journal of the Division of Health Psychology, American Psychological Association · 2015Article
- Linking genetic counseling content to short-term outcomes in individuals at elevated breast cancer risk.Journal of genetic counseling · 2014Article
- Does and should breast cancer genetic counselling include lifestyle advice?Familial cancer · 2014Article
- Distinct communication patterns during genetic counseling for late-onset Alzheimer's risk assessment.Patient education and counseling · 2014Article
- Developing patient-friendly genetic and genomic test reports: formats to promote patient engagement and understanding.Genome medicine · 2014Article
- What women with breast cancer discuss with clinicians about risk for their adolescent daughters.Journal of psychosocial oncology · 2012Article
- Use and evaluation of an individually tailored website for counselees prior to breast cancer genetic counseling.Journal of cancer education : the official journal of the American Association for Cancer Education · 2011Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
A detailed examination of the process of genetic counseling has been identified as a priority area for research by previous authors. This multicenter longitudinal study examined the process and content of genetic counseling in initial consultations with women from high-risk breast cancer families. One hundred and fifty-eight consultations with women unaffected and affected with breast cancer were audio taped and transcribed verbatim. A detailed coding system was developed. Clinical geneticists and genetic counselors demonstrated consistently good practice in giving detailed information on essential aspects related to familial breast cancer such as screening and management, genetic testing, breast cancer genetics, and prophylactic surgery. Eliciting emotional concerns and facilitating communication were found to be inconsistently present. As clinical practice guidelines and the general communication literature emphasize the importance of these factors, this is an area where training in or self-monitoring of such behaviors may assist consultants to further develop these skills.
Indexed as
Identifiers
15604639What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.