ReviewJournal of general internal medicine2004
Barriers to excellent end-of-life care for patients with dementia.
Review in Journal of general internal medicine, 2004. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 123 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
123 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- The facilitators and challenges of dying at home with dementia: A narrative synthesis.Palliative medicine · 2018Pooled it
- Antibiotic use and associated factors in patients with dementia: a systematic review.Drugs & aging · 2015Pooled it
- Trial
- Quality of end-of-life care among individuals with and without dementia: a Swedish registry-based study.BMC palliative care · 2026Article
- Experiences of End-of-Life Care Among Medical Staff in Acute Care Hospitals: A Qualitative Study.Journal of hospice and palliative care · 2026Article
- Making space for palliative care: Built environments and social practices in a novel, non-clinical respite setting.Palliative care and social practice · 2026Article
- Cultural adaptation of the serious illness conversation guide for caregivers of persons with dementia in Singapore.BMC geriatrics · 2025Article
- Initial development of the writing to heal app: A structured writing series for caregivers of spouses living with Alzheimer's disease and related dementias.Journal of Alzheimer's disease : JAD · 2025Article
- Predicting hospice eligibility among dementia patients using language models.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Deprescribing for People with Dementia: A Roadmap.Drugs & aging · 2025Review
- Knowledge, attitudes, and representations of caregivers of individuals with major neurocognitive disorders regarding palliative and end-of-life care: a narrative literature review.BMC palliative care · 2025Review
- Developing and Testing a Two-Part Intervention: Enhancing Dementia Instruction and Tool in Home Hospice Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Systemic Strategies to Prevent Nonbeneficial Treatments Near the End of Life.JAMA network open · 2025Article
- Palliative care consultation teams in long-term care: a descriptive retrospective cohort study.BMC palliative care · 2025Article
- End-of-life care of people with dementia in Latin America: A qualitative analysis.Palliative care and social practice · 2025Article
- Health care utilization at the end of life in Parkinson's disease: a population-based register study.BMC palliative care · 2024Article
- How do surrogates make treatment decisions for patients with dementia: An experimental survey study.Health economics · 2024Article
- High-Intensity Care for Nursing Home Residents with Severe Dementia Hospitalized at the End of Life: A Mixed Methods Study.Journal of the American Medical Directors Association · 2024Article
- Palliative Non-Operative Management in Geriatric Hip Fracture Patients: When Would Surgeons Abstain from Surgery?Journal of clinical medicine · 2024Article
- Improving end-of-life care for people with dementia: a mixed-methods study.BMC palliative care · 2024Article
63 more citing papers are in PubMed but not listed here.
Corrections and comments
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Authors and funding
3 authors.
Funding
Abstract
While great strides have been made recently in improving end-of-life care in the United States, people with dementia often die with inadequate pain control, with feeding tubes in place, and without the benefits of hospice care. In this paper, we discuss the most important and persistent challenges to providing excellent end-of-life care for patients with dementia, including dementia not being viewed as a terminal illness; the nature of the course and treatment decisions in advanced dementia; assessment and management of symptoms; the caregiver experience and bereavement; and health systems issues. We suggest approaches for overcoming these barriers in the domains of education, clinical practice, and public policy. As the population ages, general internists increasingly will be called upon to provide primary care for a growing number of patients dying with dementia. There are great opportunities to improve end-of-life care for this vulnerable and underserved population.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.