ArticleThe British journal of general practice : the journal of the Royal College of General Practitioners2004
Lung cancer patients' perceptions of access to financial benefits: a qualitative study.
Article in The British journal of general practice : the journal of the Royal College of General Practitioners, 2004. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
24 citing papers in PubMed, 2 syntheses or guidelines pooled it, 39 citations in OpenAlex.
- Equitable inclusion of patients with cancer on the palliative care register: a systematic review in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Pooled it
- Pooled it
- Trial
- From Mechanisms to Manifestations: A Scoping Review Exploring Cancer-Related Discrimination.Psycho-oncology · 2026Article
- Financial toxicity among cancer patients, survivors and their families in the United Kingdom: a scoping review.Journal of public health (Oxford, England) · 2023Article
- Experiences of conditional and unconditional cash transfers intended for improving health outcomes and health service use: a qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Review
- Identifying a cut-off score for the COST measure to indicate high financial toxicity and low quality of life among cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2021Article
- Changing the eligibility criteria for welfare payments at the end of life - a budget impact analysis for England and Wales.BMC health services research · 2021Article
- The experiences and needs of couples affected by prostate cancer aged 65 and under: a qualitative study.Journal of cancer survivorship : research and practice · 2021Article
- Non-visible disease, the hidden disruptive experiences of chronic illness in adversity.International journal of qualitative studies on health and well-being · 2020Article
- Understanding the Financial Needs Following Diagnosis of Breast Cancer in a Setting with Universal Health Coverage.The oncologist · 2020Article
- Perception of Cervical Cancer Patients on their Financial Challenges in Western Kenya.BMC health services research · 2018Article
- Article
- Acknowledging stigma: Its presence in patient care and medical education.Canadian family physician Medecin de famille canadien · 2017Article
- Counting the cost of cancer: out-of-pocket payments made by colorectal cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2017Article
- Psychological distress and quality of life in lung cancer: the role of health-related stigma, illness appraisals and social constraints.Psycho-oncology · 2015Article
- Perspectives of African Americans on lung cancer: a qualitative analysis.The oncologist · 2015Article
- Article
- How much does it cost to care for survivors of colorectal cancer? Caregiver's time, travel and out-of-pocket costs.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2013Article
- The multidimensional nature of the financial and economic burden of a cancer diagnosis on patients and their families: qualitative findings from a country with a mixed public-private healthcare system.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2013Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundFinancial worries may add to the stress experienced by patients and their families, but they are often not discussed with health professionals. People with lung cancer usually have to give up work, and many are terminally ill.
aimTo explore the financial concerns, perceptions and experiences of claiming benefits of people with lung cancer. DESIGN OF STUDY: Qualitative study using narrative interviews.
settingUnited Kingdom.
methodInterviews with a maximum variation sample of 45 people with lung cancer, recruited through general practitioners, consultants, nurses and support groups.
resultsSome people did not know that they could claim financial benefits, others found claim forms complicated, or were unaware that they had no legal right for important allowances to be backdated. Some people had to 'struggle' to obtain much needed benefits to which they were entitled. Patients below retirement age said that they would prefer to be working, and many were shocked by how hard it was to obtain the information needed to make claims. There was some evidence that even those who are seriously ill, and life-time tax payers, feel stigma in claiming financial help. Nurses, doctors and other patients sometimes offered valuable guidance, but many patients did not receive timely advice. The special social security rules (and DS1500 report form), which might have allowed them to claim benefits more rapidly than usual and at a higher rate, were not always understood.
conclusionMany reasons were found as to why people with lung cancer have difficulty getting the benefits that they are entitled to. Hospital and primary care staff who handle the issue sensitively and help set claims in motion provide a valuable service that should be replicated throughout the National Health Service.
Indexed as
Identifiers
15296557PMC1324838W2111437292What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.