ArticleBMJ (Clinical research ed.)2004
Cross sectional survey of multicentre clinical databases in the United Kingdom.
Article in BMJ (Clinical research ed.), 2004. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 4 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 4 syntheses or guidelines pooled it, 139 citations in OpenAlex.
- Pooled it
- Dementia registries around the globe and their applications: A systematic review.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2017Pooled it
- Impact of clinical registries on quality of patient care and clinical outcomes: A systematic review.PloS one · 2017Pooled it
- Comparative performance of private and public healthcare systems in low- and middle-income countries: a systematic review.PLoS medicine · 2012Pooled it
- Definitions and Prevalence of Multimorbidity in Large Database Studies: A Scoping Review.International journal of environmental research and public health · 2021Article
- Routine hospital data - is it good enough for trials? An example using England's Hospital Episode Statistics in the SHIFT trial of Family Therapy vs. Treatment as Usual in adolescents following self-harm.Clinical trials (London, England) · 2018Article
- Global coverage of health information systems for kidney disease: availability, challenges, and opportunities for development.Kidney international supplements · 2018Review
- Impact of clinical registries on quality of patient care and health outcomes: protocol for a systematic review.BMJ open · 2016Article
- Making sense of the shadows: priorities for creating a learning healthcare system based on routinely collected data.BMJ quality & safety · 2015Article
- Identifying complications of interventional procedures from UK routine healthcare databases: a systematic search for methods using clinical codes.BMC medical research methodology · 2014Article
- Maintaining stable symptom control in inflammatory bowel disease: a retrospective analysis of adherence, medication switches and the risk of relapse.Alimentary pharmacology & therapeutics · 2013Article
- Data linkage: a powerful research tool with potential problems.BMC health services research · 2010Article
- The volume-mortality relation for radical cystectomy in England: retrospective analysis of hospital episode statistics.BMJ (Clinical research ed.) · 2010Article
- Cross-sectional survey of multi-centre patient registries in malaysia.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2010Article
- Cross-sectional analysis of a collaborative Web-based database for lupus erythematosus-associated skin lesions: prospective enrollment of 114 patients.Archives of dermatology · 2009Article
- Comparison of administrative data with the Association of Coloproctology of Great Britain and Ireland (ACPGBI) colorectal cancer database.International journal of colorectal disease · 2008Article
- Databases as policy instruments. About extending networks as evidence-based policy.BMC health services research · 2007Article
- Use of administrative data or clinical databases as predictors of risk of death in hospital: comparison of models.BMJ (Clinical research ed.) · 2007Article
- Health care productivity.BMJ (Clinical research ed.) · 2006Article
- Variation in recruitment across sites in a consent-based clinical data registry: lessons from the Canadian Stroke Network.BMC medical ethics · 2006Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo describe the multicentre clinical databases that exist in the United Kingdom, to report on their quality, to explore which organisational and managerial features are associated with high quality, and to make recommendations for improvements.
designCross sectional survey, with interviews with database custodians and search of electronic bibliographic database (PubMed). STUDIES REVIEWED: 105 clinical databases across the United Kingdom.
resultsClinical databases existed in all areas of health care, but their distribution was uneven-cancer and surgery were better covered than mental health and obstetrics. They varied greatly in age, size, growth rate, and geographical areas covered. Their scope (and thus their potential uses) and the quality of the data collected also varied. The latter was not associated with any organisational characteristics. Despite impressive achievements, many faced substantial financial uncertainty. Considerable scope existed for improvements: greater use of nationally approved codes; more support from relevant professional organisations; greater involvement by nurses, allied health professionals, managers, and laypeople in database management teams; and more attention to data security and ensuring patient confidentiality. With some notable exceptions, the audit and research potential of most databases had not been realised: half the databases had each produced only four or fewer peer reviewed research articles.
conclusionsAt least one clinical database support unit is needed in the United Kingdom to provide assistance in organisation and management, information technology, epidemiology, and statistics. Without such an initiative, the variable picture of databases reported here is likely to persist and their potential not be realised.
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