ArticleFamilial cancer2004
Patients' and professionals' opinions of services for people at an increased risk of colorectal cancer: an exploratory qualitative study.
Article in Familial cancer, 2004. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it, 24 citations in OpenAlex.
- Primary-care providers' perceived barriers to integration of genetics services: a systematic review of the literature.Genetics in medicine : official journal of the American College of Medical Genetics · 2015Pooled it
- Primary care patients' perspectives of barriers and enablers of primary prevention and health promotion-a meta-ethnographic synthesis.PloS one · 2015Pooled it
- Differences in Perception of Healthcare Management between Patients and Professionals.International journal of environmental research and public health · 2023Article
- Nurse's Roles in Colorectal Cancer Prevention: A Narrative Review.Journal of prevention (2022) · 2022Review
- Uncovering the barriers to undergoing screening among first degree relatives of colorectal cancer patients: a review of qualitative literature.Journal of gastrointestinal oncology · 2018Review
- Development and preliminary testing of the psychosocial adjustment to hereditary diseases scale.BMC psychology · 2013Article
- Lynch syndrome: barriers to and facilitators of screening and disease management.Hereditary cancer in clinical practice · 2011Article
- Factors influencing consultation to discuss family history of cancer by asymptomatic patients in primary care.Journal of community genetics · 2011Article
- Interviews with primary care physicians regarding taking and interpreting the cancer family history.Family practice · 2008Article
- Responsibilities in cancer preventive care in Greece. A physicians' survey.Clinical & translational oncology : official publication of the Federation of Spanish Oncology Societies and of the National Cancer Institute of Mexico · 2008Article
- Colorectal cancer screening coverage in Greece. PACMeR 02.01 study collaboration.International journal of colorectal disease · 2007Article
- Colorectal cancer screening awareness among physicians in Greece.BMC gastroenterology · 2006Article
Corrections and comments
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Authors and funding
5 authors at 3 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo explore the views and opinions of patients with a family history of colorectal cancer, and of primary and secondary care health professionals, on how to improve current services for individuals with a family history of colorectal cancer.
designFocus group and interview study.
settingPrimary and secondary care centres in south east London, UK.
participantsA total of 53 people participated in this qualitative study: 18 individuals with a family history of colorectal cancer were interviewed in three focus groups and 35 health professionals were interviewed either in focus groups or individually. Visual qualitative analysis of transcribed interviews was used to identify the key themes which emerged.
main outcome measuresInterviewees' needs, views and opinions of current services and ways to improve them.
resultsSeveral areas of concern were identified. The role of primary care needs to be clarified. Education and information about services should be provided for patients and caregivers and better support is required for those undergoing screening and surveillance. Methods to ensure effective and meaningful risk communication are inadequate and require further exploration. Standardisation of care is required to ensure consistency of advice and treatment.
conclusionThese interviews revealed substantial shortfalls in the provision of services for patients at increased genetic risk of colorectal cancer. Current systems for the assessment of risk, delivery of advice, and for surveillance are inconsistent and sometimes maybe inadequate. The role of primary care physicians in service delivery requires clarification. Significant opportunities exist for the development of new, more appropriate models of service to provide better standards of care.
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