ArticleHealth expectations : an international journal of public participation in health care and health policy2004
Consulted but not heard: a qualitative study of young people's views of their local health service.
Article in Health expectations : an international journal of public participation in health care and health policy, 2004. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
What it found
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
15 citing papers in PubMed.
- Measuring patient experiences in a Children's hospital with a medical clowning intervention: a case-control study.BMC health services research · 2020Trial
- Parent experiences with paediatric allergy pathways in the West Midlands: A qualitative study.Clinical and experimental allergy : journal of the British Society for Allergy and Clinical Immunology · 2019Trial
- Perceptions and Expectations of Youth Regarding the Respect for Their Rights in the Hospital.Children (Basel, Switzerland) · 2024Article
- Not being heard: barriers to high quality unplanned hospital care during young people's transition to adult services - evidence from 'this sickle cell life' research.BMC health services research · 2019Article
- Co-production with "vulnerable" groups: Balancing protection and participation.Health science reports · 2018Article
- Participation of Children in Medical Decision-Making: Challenges and Potential Solutions.Journal of bioethical inquiry · 2016Article
- Revealing the hidden agency of children in a clinical setting.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- '[I would like] a place to be alone, other than the toilet'--Children's perspectives on paediatric hospital care in the Netherlands.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- 'Why does it happen like this?' Consulting with users and providers prior to an evaluation of services for children with life limiting conditions and their families.Journal of child health care : for professionals working with children in the hospital and community · 2015Article
- Living with diabetes: quality of care and quality of life.Patient preference and adherence · 2011Article
- Exciting but exhausting: experiences with participatory research with chronically ill adolescents.Health expectations : an international journal of public participation in health care and health policy · 2010Article
- Expectations held by type 1 and 2 diabetes mellitus patients and their relatives: the importance of facilitating the health-care process.Health expectations : an international journal of public participation in health care and health policy · 2007Article
- What choices should we be able to make about designer babies? A Citizens' Jury of young people in South Wales.Health expectations : an international journal of public participation in health care and health policy · 2006Article
- Incomprehensible consent forms: child friendly consent forms lead the way.BMJ (Clinical research ed.) · 2005Article
- Perceptions of Strategies and Intervention Approaches for HIV Self-Management among Ugandan Adolescents: A Qualitative Study.Journal of the International Association of Providers of AIDS CareArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThe objective of this study was to identify what children and young people in a health district in a large urban area experience as positive--and not so positive--about their local health services, in the light of a growing expectation that users play a more central role in the design and delivery of services.
designA qualitative study incorporating a range of methods, including interviews, play techniques and a website.
settingSchools, nurseries, community groups, in- and outpatient settings in an inner London health authority.
participantsYoung people aged between 4 and 19 years, from community (n = 92) and clinical (n = 57) settings. This included 'hard-to-reach' children, including those leaving care, those in touch with the criminal justice system, asylum seekers, and those with learning disabilities.
resultsAlongside planning and environment issues, young people particularly emphasized the impact of communication and relationships with staff on their experience of health services. DISCUSSION AND
conclusionsUsing a range of flexible and age-appropriate techniques, young people, even those as young as 4 or 5, are able to comment helpfully on their experiences of service provision. What children had to say is revealing but not astonishing to those working in the National Health Service (NHS). Clinicians and managers, to whom our findings were fed back, made this clear. If we have known for so long that the issues raised here are problems, why are we so poor at acting on this knowledge? The authors suggest four explanations.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.