ArticleJournal of genetic counseling2003
An investigation of genetic counselors' discussion of genetic discrimination with cancer risk patients.
Article in Journal of genetic counseling, 2003. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
11 citing papers in PubMed.
- Cardiovascular genetic counselor decision making about discussing life insurance with patients.Journal of genetic counseling · 2025Article
- Investigating men's motivations to engage in genetic screening for BRCA1 and BRCA2 mutations.PloS one · 2022Article
- Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors.Journal of genetic counseling · 2015Article
- Family physicians' awareness and knowledge of the Genetic Information Non-Discrimination Act (GINA).Journal of genetic counseling · 2012Article
- The establishment of an ethical guideline for genetic testing through citizen consensus via the Internet in Taiwan.Journal of medical Internet research · 2010Article
- Stigmatization and male identity: Norwegian males' experience after identification as BRCA1/2 mutation carriers.Journal of genetic counseling · 2010Article
- Evolving perspectives on genetic discrimination in health insurance among health care providers.Familial cancer · 2010Article
- Attitudes and practice of genetic counselors regarding anonymous testing for BRCA1/2.Journal of genetic counseling · 2009Article
- The impact of social roles on the experience of men in BRCA1/2 families: implications for counseling.Journal of genetic counseling · 2009Article
- Civilian and military genetics: nondiscrimination policy in a post-GINA world.American journal of human genetics · 2008Article
- Engagement with genetic discrimination: concerns and experiences in the context of Huntington disease.European journal of human genetics : EJHG · 2008Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Twenty-five genetic counselors who see familial cancer risk patients were interviewed about their definitions of genetic discrimination, perceptions of patient risk for discrimination, frequency and type of discrimination experienced by their patients, sources of information about discrimination, and what they tell patients about genetic discrimination. There was variability in participant definitions and content of discussions of genetic discrimination. Although 82% regarded risk to be low to theoretical, 40% reported possible instances of genetic discrimination, including insurance companies requiring results to cover procedures, denial of life/health insurance, social discrimination, and employment discrimination. Ninety-six percent of the sample reported always or almost always discussing genetic discrimination, and one or more of the following: insurance discrimination risks, protective legislation, no known cases positively documenting discrimination, strategies to avoid discrimination, and uncertainty of protective measures. The majority use current literature and research as information sources. Practice, policy, and research implications are discussed.
Indexed as
Identifiers
15043057What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.