ArticleFamilial cancer2003
What motivates interest in attending a familial cancer genetics clinic?
Article in Familial cancer, 2003. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
20 citing papers in PubMed, 33 citations in OpenAlex.
- Knowledge and expectations of women undergoing cancer genetic risk assessment: a qualitative analysis of free-text questionnaire comments.Journal of genetic counseling · 2007Trial
- Attitudes Toward Glaucoma Genetic Risk Assessment in Unaffected Individuals.Translational vision science & technology · 2022Article
- Using a Tailored Digital Health Intervention for Family Communication and Cascade Genetic Testing in Swiss and Korean Families With Hereditary Breast and Ovarian Cancer: Protocol for the DIALOGUE Study.JMIR research protocols · 2021Article
- Review
- Dying to see you? Deaths on a clinical genetics waiting list in the Republic of Ireland; what are the consequences?Journal of community genetics · 2021Article
- Impact of Appointment Waiting Time on Attendance Rates at a Clinical Cancer Genetics Service.Journal of genetic counseling · 2018Article
- Development of a Web-based Family Intervention for BRCA Carriers and Their Biological Relatives: Acceptability, Feasibility, and Usability Study.JMIR cancer · 2018Article
- Genomics in general practice: Generation Genome.The British journal of general practice : the journal of the Royal College of General Practitioners · 2017Article
- Why Is Cancer Genetic Counseling Underutilized by Women Identified as at Risk for Hereditary Breast Cancer? Patient Perceptions of Barriers Following a Referral Letter.Journal of genetic counseling · 2017Article
- Communicating with biobank participants: preferences for receiving and providing updates to researchers.Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology · 2015Article
- An assessment of genetic counseling services for individuals with multiple sclerosis.Journal of genetic counseling · 2015Article
- Characteristics associated with genetic counseling referral and BRCA1/2 testing among women in a large integrated health system.Genetics in medicine : official journal of the American College of Medical Genetics · 2015Article
- What hinders minority ethnic access to cancer genetics services and what may help?European journal of human genetics : EJHG · 2014Article
- Barriers and facilitators for utilization of genetic counseling and risk assessment services in young female breast cancer survivors.Journal of cancer epidemiology · 2012Article
- Motivators for participation in a whole-genome sequencing study: implications for translational genomics research.European journal of human genetics : EJHG · 2011Article
- Interest in genetic testing for modest changes in breast cancer risk: implications for SNP testing.Public health genomics · 2011Article
- Risk perception after genetic counseling in patients with increased risk of cancer.Hereditary cancer in clinical practice · 2009Article
- Inequality of use of cancer genetics services by members of breast, ovarian and colorectal cancer families in South East Scotland.Familial cancer · 2008Article
- Nurse-led cancer genetics clinics in primary and secondary care in varied ethnic population areas: interaction with primary care to improve ascertainment of individuals from ethnic minorities.Familial cancer · 2007Article
- How to establish a high-risk cancer genetics clinic: limitations and successes.Current oncology reports · 2005Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
11 authors at 8 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The motivation of people who seek advice about a family history of cancer was explored in a cross sectional study of new cancer referrals to five regional cancer genetics centres in England: the PACT (patient and clinical team) psychosocial study. One hundred sixty-two people took part. Measures were source of referral, estimated and perceived cancer risk, level of cancer worry, and personal and family-centred reasons for wanting to be seen in clinic. General practitioners referred more people than hospital doctors, and referred a larger proportion of people at low genetic risk of developing cancer. More than half of the participants had been the first to raise the issue of their family history of cancer. Personal motivation for referral is clearly different for those who have had a diagnosis of cancer and for those with children, compared to unaffected and childless people, and is characterised by altruistic concern for other family members rather than a perception of increased personal risk. Men and people from ethnic minorities are very significantly under-represented. Understanding people's motivation may be useful in targeting genetic counselling for people with a family history of cancer.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.