Trial reportThe British journal of general practice : the journal of the Royal College of General Practitioners2003
A cluster randomised controlled trial of patient-held medical records for people with schizophrenia receiving shared care.
Trial report in The British journal of general practice : the journal of the Royal College of General Practitioners, 2003. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
14 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Shared care across the interface between primary and specialty care in management of long term conditions.The Cochrane database of systematic reviews · 2017Pooled it
- Patients' views on the effectiveness of patient-held records: a systematic review and thematic synthesis of qualitative studies.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- User-held personalised information for routine care of people with severe mental illness.The Cochrane database of systematic reviews · 2013Pooled it
- The nature of informational continuity of care in general practice.The British journal of general practice : the journal of the Royal College of General Practitioners · 2008Pooled it
- Trial
- Creation of consensus recommendations for collaborative practice in the Malaysian psychiatric system: a modified Delphi study.International journal of mental health systems · 2020Article
- A Patient-Held Medical Record Integrating Depression Care into Diabetes Care.Japanese clinical medicine · 2016Article
- Shared care in mental illness: A rapid review to inform implementation.International journal of mental health systems · 2011Article
- Rapid progress or lengthy process? Electronic personal health records in mental health.BMC psychiatry · 2011Review
- Effectiveness of service linkages in primary mental health care: a narrative review part 1.BMC health services research · 2011Review
- Patient-Held Maternal and/or Child Health Records: Meeting the Information Needs of Patients and Healthcare Providers in Developing Countries?Online journal of public health informatics · 2011Article
- Reducing stigma and discrimination: Candidate interventions.International journal of mental health systems · 2008Article
- Self-management for people with inflammatory bowel disease.Canadian journal of gastroenterology = Journal canadien de gastroenterologie · 2008Review
- Personal health records: a scoping review.Journal of the American Medical Informatics Association : JAMIAArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPatient-held records can improve communication across the primary-secondary interface. There has been no previous rigorous assessment of the utility of patient-held records for people with schizophrenia from a primary care perspective and their value for this population is unclear.
aimTo evaluate the effectiveness of a patient-held record for patients with schizophrenia receiving shared care. DESIGN OF STUDY: Cluster randomised controlled trial.
settingSeventy-four general practices and six community mental health localities in Birmingham, England between June 1998 and June 1999.
methodA sample of 201 patients with schizophrenia (ICD-10 classification F20) was recruited; of these, 100 were intervention and 101 were control. Patient-held records were given to the intervention patients. At 12-month follow-up, all patients were accounted for and 191 (95%) were revisited. Primary outcomes were the Verona Service Satisfaction Scale-54 (VSSS-54) and the Krawiecka and Goldberg (K & G) rating scale of psychopathology at 12-month follow-up. Secondary outcomes were use of primary and secondary care services.
resultsA total of 63/92 (68.5%) patients still had the patient-held record, 64/92 (69.6%) had used it, and 39 (60.9%) of the 64 who had used it said the patient-held record was regularly used by their keyworker. However the patient-held record had no significant effect on primary outcomes (VSSS-54: F1,116 = 0.06, P = 0.801, K & G: F1,116 = 0.6, P = 0.439) or on use of services. A higher symptom score was associated with not using the patient-held record.
conclusionsThe trial provides no good evidence to suggest that patient-held records should be introduced as part of routine shared care for all patients with schizophrenia. However, the patient-held record was acceptable to patients with schizophrenia and acted as a communication tool, particularly between patients and keyworkers.
Indexed as
Identifiers
14694695PMC1314544What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.