ReviewHealth care analysis : HCA : journal of health philosophy and policy2003
Implicit normativity in evidence-based medicine: a plea for integrated empirical ethics research.
Review in Health care analysis : HCA : journal of health philosophy and policy, 2003. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 38 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
38 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Shared decision-making behaviours in health professionals: a systematic review of studies based on the Theory of Planned Behaviour.Health expectations : an international journal of public participation in health care and health policy · 2015Pooled it
- The systematic guideline review: method, rationale, and test on chronic heart failure.BMC health services research · 2009Pooled it
- Compliance with Clinical Guidelines and AI-Based Clinical Decision Support Systems: Implications for Ethics and Trust.Science and engineering ethics · 2025Article
- Examining Practices Related to Ethical Aspects in eHealth Evaluation Research: Protocol for a Scoping Review.JMIR research protocols · 2025Article
- Engaging adolescents and young adults in decisions about return of genomic research results: study protocol for a mixed-methods longitudinal clinical trial protocol.BMC medical informatics and decision making · 2024Article
- The Vagueness of Integrating the Empirical and the Normative: Researchers' Views on Doing Empirical Bioethics.Journal of bioethical inquiry · 2024Article
- Digital bioethics: introducing new methods for the study of bioethical issues.Journal of medical ethics · 2023Article
- Engaging Adolescents and Young Adults in Decisions About Return of Genomic Research Results: a mixed-methods longitudinal clinical trial protocol.Research square · 2023Article
- Sharing decisions amid uncertainties: a qualitative interview study of healthcare professionals' ethical challenges and norms regarding decision-making in gender-affirming medical care.BMC medical ethics · 2022Article
- Asking the right questions: towards a person-centered conception of shared decision-making regarding treatment of advanced chronic kidney disease in older patients.BMC medical ethics · 2022Article
- How the logics of the market, bureaucracy, professionalism and care are reconciled in practice: an empirical ethics approach.BMC health services research · 2020Article
- Managing ethical uncertainty: implicit normativity and the sociology of ethics.Sociology of health & illness · 2020Article
- What does 'quality' add? Towards an ethics of healthcare improvement.Journal of medical ethics · 2020Article
- Value-impregnated factual claims may undermine medical decision-making.Clinical ethics · 2018Article
- Reasons for being in favour of or against genome modification: a survey of the Dutch general public.Human reproduction open · 2018Article
- The use of empirical research in bioethics: a survey of researchers in twelve European countries.BMC medical ethics · 2017Article
- The ECOUTER methodology for stakeholder engagement in translational research.BMC medical ethics · 2017Article
- Empirical and philosophical analysis of physicians' judgments of medical indications.Clinical ethics · 2016Article
- Managing Ethical Challenges to Mental Health Research in Post-Conflict Settings.Developing world bioethics · 2016Article
- Examining the ethical and social issues of health technology design through the public appraisal of prospective scenarios: a study protocol describing a multimedia-based deliberative method.Implementation science : IS · 2014Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This paper challenges the traditional assumption that descriptive and prescriptive sciences are essentially distinct by presenting a study on the implicit normativity of the production and presentation of biomedical scientific facts within evidence-based medicine. This interdisciplinary study serves as an illustration of the potential worth of the concept of implicit normativity for bioethics in general and for integrated empirical ethics research in particular. It demonstrates how both the production and presentation of scientific information in an evidence-based decision-support contain implicit presuppositions and values, which prestructure the moral environment of the clinical process of decision-making. As a consequence, the evidence-based decision support did not only support the clinical decision-making process; it also transformed it in a morally significant way. This phenomenon undermines the assumption within much of the literature on patient autonomy that information disclosure is a conditional requirement before patient autonomy even starts; patient autonomy is already influenced during the production and presentation of information. These results imply an increased responsibility of those who produce and present evidence-based facts (i.e. scientists in general and physicians in particular). The insights of this study not only involve a different focus on both theory and practice of patient autonomy and informed consent, but they also call for a broader scope of morality than does traditional empirical research in bioethics. The concept of implicit normativity within integrated empirical ethics research calls for strong cooperation between bioethicists and descriptive scientists, i.e., a cooperation that goes beyond the discipline-specific epistemic values and that takes place during all phases of the research process.
Indexed as
Identifiers
14510310What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.