ArticleHealth expectations : an international journal of public participation in health care and health policy2003
Evolving the multiple roles of 'patients' in health-care research: reflections after involvement in a trial of shared decision-making.
Article in Health expectations : an international journal of public participation in health care and health policy, 2003. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Consumers' and health providers' views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis.The Cochrane database of systematic reviews · 2023Pooled it
- Effects of consumers and health providers working in partnership on health services planning, delivery and evaluation.The Cochrane database of systematic reviews · 2021Pooled it
- Participants' preference for type of leaflet used to feed back the results of a randomised trial: a survey.Trials · 2010Trial
- Facilitating choice when engaging young people with disabilities: reflections from co-researcher training.Research involvement and engagement · 2024Article
- The value, challenges and practical considerations of conducting qualitative research on antimicrobial stewardship in primary care.JAC-antimicrobial resistance · 2022Review
- Needs-led research: a way of employing user involvement when devising research questions on the trust model in community home-based health care services in Norway.Research involvement and engagement · 2021Article
- Perspectives on public involvement in health research from Singapore: The potential of a supported group model of involvement.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Reasons given by pregnant women for participating in a clinical trial aimed at preventing premature delivery: a qualitative analysis.BMC pregnancy and childbirth · 2019Article
- The extent, quality and impact of patient and public involvement in primary care research: a mixed methods study.Research involvement and engagement · 2018Article
- Moving towards a more inclusive patient and public involvement in health research paradigm: the incorporation of a trauma-informed intersectional analysis.BMC health services research · 2017Article
- Article
- Patient empowerment as a component of health system reforms: rights, benefits and vested interests.Internal and emergency medicine · 2012Review
- Developing participatory research in radiology: the use of a graffiti wall, cameras and a video box in a Scottish radiology department.Pediatric radiology · 2010Article
- User involvement in the development of a research bid: barriers, enablers and impacts.Health expectations : an international journal of public participation in health care and health policy · 2007Article
- Participating in a trial in a critical situation: a qualitative study in pregnancy.Quality & safety in health care · 2006Article
- Receiving a summary of the results of a trial: qualitative study of participants' views.BMJ (Clinical research ed.) · 2006Article
- Perceptions around concordance--focus groups and semi-structured interviews conducted with consumers, pharmacists and general practitioners.Health expectations : an international journal of public participation in health care and health policy · 2004Article
- Patients' understanding of risk.BMJ (Clinical research ed.) · 2003Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThis paper offers 'consumer-led' reflections by steering group members of a patient-centred research study involving consumer advocates, patients' associations and patients, throughout the whole study, from pre- to post-study phases. ORIGINAL STUDY
designThe study: 'Shared decision making and risk communication in general practice' incorporated systematic reviews, psychometric evaluation of outcome measures, and quantitative, qualitative and health economic analyses of a cluster randomized trial of professional skill development, all informed by consumer and patient engagement. SETTING AND
participantsThe work was produced by a wide collaboration led by researchers from the Department of General Practice, University of Wales College of Medicine, Cardiff, including a consumers' advisory group and a patients' association. The study participants were 20 general practitioners from Gwent, their practice staff, and almost 800 patients at these practices. DISCUSSION: Consumers and patients contributed to several stages of the research from inception and design, securing of funding, implementation of the protocol, and interpretation and dissemination of the findings. 'Patient involvement' research initiatives that include an equally wide variety of 'user' participants as 'health-professional' participants, accountable to a 'Health in Partnership' funded project, require a user-led viewpoint to be presented and disseminated. This paper presents reflections on the processes of the research, the interpretations of study findings by the involved parties, and notes how this model is fundamental to effective research in the field of patient-centred health care if future practice, policy and research are to change.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.