ArticleJournal of genetic counseling2002
A survey of genetic counselors' strategies for addressing ethical and professional challenges in practice.
Article in Journal of genetic counseling, 2002. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed.
- How do healthcare professionals respond to ethical challenges regarding information management? A review of empirical studies.Global bioethics = Problemi di bioetica · 2021Article
- Reducing Disparities in Receipt of Genetic Counseling for Underserved Women at Risk of Hereditary Breast and Ovarian Cancer.Journal of women's health (2002) · 2020Article
- Managing Couple Conflict During Prenatal Counseling Sessions: An Investigation of Genetic Counselor Experiences and Perceptions.Journal of genetic counseling · 2018Article
- The Genetic Counselor's Role in Managing Ethical Dilemmas Arising in the Laboratory Setting.Journal of genetic counseling · 2016Review
- Development, Experience, and Expression of Meaning in Genetic Counselors' Lives: an Exploratory Analysis.Journal of genetic counseling · 2016Article
- Genetic Test Results and Disclosure to Family Members: Qualitative Interviews of Healthcare Professionals' Perceptions of Ethical and Professional Issues in France.Journal of genetic counseling · 2016Article
- Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors.Journal of genetic counseling · 2015Article
- Ethical and Professional Challenges Encountered by Laboratory Genetic Counselors.Journal of genetic counseling · 2015Article
- Respecting autonomous decision making among Filipinos: a re-emphasis in genetic counseling.Journal of genetic counseling · 2015Article
- Ethical and professional challenges of genetic counseling - the case of Austria.Journal of genetic counseling · 2013Article
- Attitude of medical school students in China towards genetic testing and counseling issues in FXS.Journal of genetic counseling · 2013Article
- Enhancing family communication about genetics: ethical and professional dilemmas.Journal of genetic counseling · 2013Article
- A survey of ethical and professional challenges experienced by Spanish health-care professionals that provide genetic counseling services.Journal of genetic counseling · 2012Article
- Factors associated with experiences of genetic discrimination among individuals at risk for Huntington disease.American journal of medical genetics. Part B, Neuropsychiatric genetics : the official publication of the International Society of Psychiatric Genetics · 2011Article
- Genetic counselors' perceived responsibilities regarding reproductive issues for patients at risk for Huntington disease.Journal of genetic counseling · 2010Article
- Informed consent in genomics and genetic research.Annual review of genomics and human genetics · 2010Review
- Genetic counselors' religiosity & spirituality: are genetic counselors different from the general population?Journal of genetic counseling · 2009Article
- A comparative analysis of ethical and professional challenges experienced by Australian and U.S. genetic counselors.Journal of genetic counseling · 2009Article
- Professional ambivalence: accounts of ethical practice in childhood genetic testing.Journal of genetic counseling · 2009Article
- Role of parenting relationship quality in communicating about maternal BRCA1/2 genetic test results with children.Journal of genetic counseling · 2008Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
There is limited research about ethical and professional dilemmas that genetic counselors encounter in their practice and their strategies for addressing them. In this study, 454 genetic counselors rated the frequency with which they encounter each of 16 ethical/professional challenges identified and categorized previously (McCarthy Veach P., Bartels DM, LeRoy BS (2001) J Genet Couns 10(2):97-119). Over 40% indicated these issues occurred frequently: patient emotions, diversity, financial constraints, uncertainty, and colleague error. Two hundred and fifty-five respondents provided personal anecdotes describing exceptionally challenging situations and recommended strategies for addressing them. Most of their anecdotes involved informed consent, value conflicts, confidentiality, colleague error, withholding information, and resource allocation. The most frequently recommended strategies were further discussion with patients, consultation with other professionals, and referral to other health sources. Thirty-five respondents were unable to/did not offer strategies. Respondent demographics were not related to frequency of issues, type of anecdote, or recommended strategies. Practice, policy, and research implications are discussed.
Indexed as
Identifiers
12735294What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.