ArticleHealth expectations : an international journal of public participation in health care and health policy2003
Barriers to patient information provision in primary care: patients' and general practitioners' experiences and expectations of information for low back pain.
Article in Health expectations : an international journal of public participation in health care and health policy, 2003. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT01398696 (Impact of Four Patient Information Leaflets), which is not on this map. Cited by 39 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Impact of Four Patient Information Leaflets (PIL) on Patient Behaviour : a Randomised Controlled Trial in Primary Care.
Who cites it
39 citing papers in PubMed.
- A feasibility randomised controlled trial of patient education videos assessing multimedia design effects on engagement and learning in adolescents with scoliosis.BMC medical education · 2026Trial
- Interdisciplinary Practice Models for Older Adults With Back Pain: A Qualitative Evaluation.The Gerontologist · 2018Trial
- The COPE LBP trial: cognitive patient education for low back pain--a cluster randomized controlled trial in primary care.BMC musculoskeletal disorders · 2010Trial
- Mapping and optimization of a patient-centred care pathway for treatment of adolescent idiopathic scoliosis: a qualitative study.BMC health services research · 2026Article
- Evaluating musculoskeletal imaging communication interventions using behavioural science: a scoping review using the COM-B model.BMJ open · 2025Article
- Article
- The Mobile Patient Information Assistant (PIA) App during the Inpatient Surgical Hospital Stay: Evaluation of Usability and Patient Approval.Healthcare (Basel, Switzerland) · 2023Article
- Perception of Goals and Expected Outcomes in Older Hip Fracture Patients and Their Medical Staff: A Cross Sectional Study.Geriatric orthopaedic surgery & rehabilitation · 2023Article
- Exploring patients' lived experience on the barriers to accessing low back pain health services.African journal of primary health care & family medicine · 2022Article
- Patients' perceptions of conflicting information on chronic medications: a prospective survey in Switzerland.BMJ open · 2022Article
- Observational
- Clinician and patient beliefs about diagnostic imaging for low back pain: a systematic qualitative evidence synthesis.BMJ open · 2020Article
- An Internet-Based Consumer Resource for People with Low Back Pain (MyBackPain): Development and Evaluation.JMIR rehabilitation and assistive technologies · 2020Article
- Quality and availability of information in primary healthcare: the patient perspective.Scandinavian journal of primary health care · 2020Article
- MyBackPain-evaluation of an innovative consumer-focused website for low back pain: study protocol for a randomised controlled trial.BMJ open · 2019Article
- The Provision of Patient Information about Nystagmus.The British and Irish orthoptic journal · 2018Article
- Preferences for Web-Based Information Material for Low Back Pain: Qualitative Interview Study on People Consulting a General Practitioner.JMIR rehabilitation and assistive technologies · 2018Article
- Patients' perceived needs for medical services for non-specific low back pain: A systematic scoping review.PloS one · 2018Article
- Meta-ethnography to understand healthcare professionals' experience of treating adults with chronic non-malignant pain.BMJ open · 2017Article
- Conflicting health information: a critical research need.Health expectations : an international journal of public participation in health care and health policy · 2016Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAs patient involvement in health-care increases, the role of information is crucial, especially in conditions where self-management is considered an integral part of care. However, the suitability and applicability of much patient information has not been appraised in terms of how far it meets patients' information needs.
aimsTo ascertain patients' and clinicians' experiences and expectations of information in low back pain in order to suggest a suitable 'patient-centred' content for a patient information pack to be used in a primary care setting.
methodsA qualitative study using semi-structured interviews with General Practitioners (GPs) (n = 15) and focus groups comprising patients with low back pain (n = 37).
resultsBarriers to information-giving for low back pain in primary care exist. Patients are dissatisfied with the information they receive from their GPs, especially regarding diagnosis and treatment. Patients tend to access information from a variety of other sources, which is often contradictory, conflicts with research evidence and leads to unreasonable expectations. GPs have varying views regarding the value of patient information and are equivocal about their roles as information providers. Although The Back Book is generally acceptable as a patient information leaflet for low back pain, attention to the tone of the text is required.
conclusionsBarriers exist to patient information provision, both generally and for low back pain, which need to be addressed in order to close the gap between strategy and implementation. Improving clinician communication skills and involving patients in developing information materials which meet their needs are crucial to this process.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.