ArticleHealth expectations : an international journal of public participation in health care and health policy2002
"Well, have I got cancer or haven't I?" The psycho-social issues for women diagnosed with ductal carcinoma in situ.
Article in Health expectations : an international journal of public participation in health care and health policy, 2002. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 1 of them a synthesis that pooled it.
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Who cites it
19 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Quality of life issues in patients with ductal carcinoma in situ: a systematic review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Pooled it
- Trial
- Labels, Language, and Other Strategies to Improve Communication About Lower Grade Forms of Ductal Carcinoma In Situ of the Breast: A National Delphi Survey.International journal of breast cancer · 2025Article
- Women's views about current and future management of Ductal Carcinoma in Situ (DCIS): A mixed-methods study.PloS one · 2023Article
- Prediction Models and Decision Aids for Women with Ductal Carcinoma In Situ: A Systematic Literature Review.Cancers · 2022Review
- Article
- Identifying opportunities to support patient-centred care for ductal carcinoma in situ: qualitative interviews with clinicians.BMC cancer · 2020Article
- Recommendations to improve patient-centred care for ductal carcinoma in situ: Qualitative focus groups with women.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Interventions are needed to support patient-provider decision-making for DCIS: a scoping review.Breast cancer research and treatment · 2018Article
- A Nationwide Cross-Sectional Survey of UK Breast Surgeons' Views on the Management of Ductal Carcinoma In Situ.International journal of breast cancer · 2015Article
- Article
- Ten-year risk of diagnostic mammograms and invasive breast procedures after breast-conserving surgery for DCIS.Journal of the National Cancer Institute · 2012Article
- Development and pilot testing of a communication aid to assist clinicians to communicate with women diagnosed with ductal carcinoma in situ (DCIS).Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2011Article
- Article
- Quality-of-life issues in patients with ductal carcinoma in situ.Journal of the National Cancer Institute. Monographs · 2010Review
- Adherence to long-term surveillance mammography among women with ductal carcinoma in situ treated with breast-conserving surgery.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2009Article
- Informed decision making before initiating screening mammography: does it occur and does it make a difference?Health expectations : an international journal of public participation in health care and health policy · 2008Article
- Discrepancies in the diagnosis of intraductal proliferative lesions of the breast and its management implications: results of a multinational survey.Virchows Archiv : an international journal of pathology · 2006Article
- Challenges in ductal carcinoma in situ risk communication and decision-making: report from an American Cancer Society and National Cancer Institute workshop.CA: a cancer journal for cliniciansArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesTo explore women's experience of being diagnosed with ductal carcinoma in situ (DCIS) in relation to the following: response to the diagnosis; understanding about the diagnosis; satisfaction with information; satisfaction with the level of involvement in treatment decision-making and satisfaction with support services.
designAn explorative descriptive qualitative design was used to facilitate an in-depth exploration of women's experiences. SETTING AND
participantsFive focus group interviews were conducted in New South Wales (NSW), Australia, involving 26 women diagnosed with DCIS.
resultsDCIS is a non-invasive breast disease, that in most cases will not recur if treated, and cannot of itself metastasize to other parts of the body. However, this study found that women were confused about whether or not they had cancer that could result in death. Women's confusion was compounded by the use of the term "carcinoma" and by the recommendation of treatments such as mastectomy. Women's confusion was not alleviated by appropriate information, with most women reporting dissatisfaction with the information they received specifically about DCIS.
conclusionsThis study identifies that a diagnosis of DCIS has a significant psychological impact on women. The communication challenges highlighted in this study are not only relevant to DCIS but to any other disease in which the natural history is uncertain and the evidence about treatment effectiveness is still emerging. Further research is needed in areas such as DCIS to explore the difficulties experienced in doctor-patient communication and their impact on patient outcomes, and how to optimize doctor-patient communication.
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