ArticleHealth expectations : an international journal of public participation in health care and health policy2002
Information and support for women following the primary treatment of breast cancer.
Article in Health expectations : an international journal of public participation in health care and health policy, 2002. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 39 papers.
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Who cites it
39 citing papers in PubMed.
- Article
- Prevalence of radiotherapy, chemotherapy and access to supportive care in cancer in Brazil, China, France, Russia and the USA.European journal of cancer care · 2022Article
- Investigation of the Effects of an Online Support Group for Mental Health Problems on Stigma and Help-Seeking Among Japanese Adults: Cross-sectional Study.JMIR formative research · 2021Article
- Does basic information concerning nutrition improve the information needs of breast cancer patients? An evaluation.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2020Article
- Understanding the Use of Smartphone Apps for Health Information Among Pregnant Chinese Women: Mixed Methods Study.JMIR mHealth and uHealth · 2019Article
- Article
- Influence of Social Determinants, Lifestyle, Emotional Well-Being and the Use of Unconventional Therapies in Breast Cancer Progression in a Cohort of Women in Barcelona: Protocol for the DAMA Cohort.JMIR research protocols · 2017Article
- Article
- Identifying patient-reported outcomes of telephone-based breast cancer support services.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2017Article
- The future of mental health care: peer-to-peer support and social media.Epidemiology and psychiatric sciences · 2016Article
- Unmet supportive care needs and desire for assistance in patients receiving radiation treatment: Implications for oncology nursing.Canadian oncology nursing journal = Revue canadienne de nursing oncologique · 2016Article
- Article
- Geographical comparisons of information and support needs of Australian women following the primary treatment of breast cancer: a 10-year replication study.Health expectations : an international journal of public participation in health care and health policy · 2015Article
- A survey of the breast care nurse role in the provision of information and supportive care to Australian women diagnosed with breast cancer.Nursing open · 2015Article
- Psychosocial Information Requirements for Multimorbid Breast Cancer Patients in Breast Centres in North Rhine Westphalia.Geburtshilfe und Frauenheilkunde · 2015Article
- Sources and types of online information that breast cancer patients read and discuss with their doctors.Palliative & supportive care · 2015Article
- The management of acute adverse effects of breast cancer treatment in general practice: a video-vignette study.Journal of medical Internet research · 2014Article
- Internet access and use by COPD patients in the National Emphysema/COPD Association Survey.BMC pulmonary medicine · 2014Article
- Patients and Methods of the PATH Biobank - A Resource for Breast Cancer Research.Geburtshilfe und Frauenheilkunde · 2014Article
- Emotional well-being years post-treatment for breast cancer: prospective, multi-ethnic, and population-based analysis.Journal of cancer survivorship : research and practice · 2014Article
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveTo examine the need for, use of and satisfaction with information and support following primary treatment of breast cancer.
designCross-sectional survey.
participantsCohort of 266 surviving women diagnosed with breast cancer over a 25-month period at a tertiary hospital, Adelaide, Australia. Time since diagnosis ranged from 6 to 30 months.
main outcome measuresNeed for, use of and satisfaction with information and support.
resultsWomen reported high levels of need for information about a variety of issues following breast cancer treatment. Ninety-four percentage reported a high level of need for information about one or more issues, particularly recognizing a recurrence, chances of cure and risk to family members of breast cancer. However, few women (2-32%) reported receiving such information. The most frequently used source of information was the surgeon followed by television, newspapers and books. The most frequently used source of support was family followed by friends and the surgeon. Few women (<7%) used formal support services or the Internet. Women were very satisfied with the information and support that they received from the surgeon and other health professionals but reported receiving decreasing amounts of information and support from them over time.
conclusionsWomen experience a high need for information about breast cancer related issues following primary treatment of breast cancer. These needs remain largely unmet as few women receive information about issues that concern them. The role of the surgeon and other health professionals is critical in narrowing the gap between needing and receiving information.
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