Evidence map›Paper›PMID 12199658›Full record

ArticleHealth expectations : an international journal of public participation in health care and health policy2002

User involvement in clinical governance.

Susan Pickard, Martin Marshall, Anne Rogers, Rod Sheaff, Bonnie Sibbald, Stephen Campbell, Shirley Halliwell, Martin Roland

Open access · bronzeAbstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2002. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 1 pooled it
11.9field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 1 synthesis or guideline pooled it, 46 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Article
  4. Review
  5. Article
  6. Article
  7. Involvement of patients or their representatives in quality management functions in EU hospitals: implementation and impact on patient-centred care strategies.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2014
    Article
  8. The role of community representatives on health service committees: staff expectations vs. reality.Health expectations : an international journal of public participation in health care and health policy · 2011
    Article
  9. Exploring the influence of service user involvement on health and social care services for cancer.Health expectations : an international journal of public participation in health care and health policy · 2011
    Article
  10. Patients' priorities for ambulatory hospital care centres. A survey and discrete choice experiment among elderly and chronically ill patients of a Dutch hospital.Health expectations : an international journal of public participation in health care and health policy · 2009
    Article
  11. Lay perceptions of the desired role and type of user involvement in clinical governance.Health expectations : an international journal of public participation in health care and health policy · 2009
    Article
  12. [What are patients' rights?].Atencion primaria · 2008
    Article
  13. Article
  14. A survey and audit of the first 'Guides to Local Health Services' produced by Primary Care Trusts in England.Health expectations : an international journal of public participation in health care and health policy · 2005
    Article
  15. Whatever happened to shared decision-making?Health expectations : an international journal of public participation in health care and health policy · 2002
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 1 institution in 1 country.

Susan PickardNational Primary Care Research and Development Centre, University of Manchester, Manchester, UK. susan.pickard@man.ac.uk
Martin Marshall
Anne Rogers
Rod Sheaff
Bonnie Sibbald
Stephen Campbell
Shirley Halliwell
Martin Roland
University of Manchester · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectivesTo investigate the involvement of users in clinical governance activities within Primary Care Groups (PCGs) and Trusts (PCTs). Drawing on policy and guidance published since 1997, the paper sets out a framework for how users are involved in this agenda, evaluates practice against this standard and suggests why current practice for user involvement in clinical governance is flawed and why this reflects a flaw in the policy design as much as its implementation.

designQualitative data comprising semi-structured interviews, reviews of documentary evidence and relevant literature.

settingTwelve PCGs/PCTs in England purposively selected to provide variation in size, rurality and group or trust status.

participantsKey stakeholders including Lay Board members (n = 12), Chief Executives (CEs) (n = 12), Clinical Governance Leads (CG leads) (n = 14), Mental Health Leads (MH leads) (n = 9), Board Chairs (n = 2) and one Executive Committee Lead.

resultsDespite an acknowledgement of an organizational commitment to lay involvement, in practice very little has occurred. The role of lay Board members in setting priorities and implementing and monitoring clinical governance remains low. Beyond Board level, involvement of users, patients of GP practices and the general public is patchy and superficial. The PCGs/PCTs continue to rely heavily on Community Health Councils (CHCs) as a conduit or substitute for user involvement; although their abolition is planned, their role to be fulfilled by new organizations called Voices, which will have an expanded remit in addition to replacing CHCs.

conclusionsClarity is required about the role of lay members in the committees and subcommittees of PCGs and PCTs. Involvement of the wider public should spring naturally from the questions under consideration, rather than be regarded as an end in itself.

Indexed as

Community ParticipationNational Health ProgramsPrimary Health CarePublic OpinionUnited Kingdom

Identifiers

PMID12199658
PMCPMC5060150
OpenAlexW2126625335

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.